"tightness "in abdomen
May 18, 2013 at 6:07 pm
Has anyone experienced tighness in the abdomen? My husband is having a re-ocurrence of symptoms ( 3 years after initial treatment for small fibre variant of GBS) the main symptoms are gastroparesis and tightness in the abdomen. Some of the old residuals in the legs, feet and back are also present.
Is the “belt “feeling a common symmpton for anyone with GBS or a varitan thereof?
We would appreciate any insight.
May 29, 2013 at 2:34 am
I still deal with the ‘band’ around my waist
May 30, 2013 at 3:41 am
Hi there Guitar Guy- we connected about 3 years ago when my husband first started with GBS symptoms. I think you are in Canada too? We are now seeing Dr. Bril in Toronto again.She has ordered an MRI of the spine to show anything that will allow the Canadian medical system to give him more IVIG—no easy feat in this “rationing” system of medical care in Canada!!
WHere are you located?
May 30, 2013 at 5:17 am
IvIg is rationed because it’s a scarce resource, not only in Canada.
June 2, 2013 at 12:07 pm
Hi Ottawa Help
I live in New Tecumseth, about 40 min. north of Toronto. I haven’t seen Dr. Bril, is she at Sunnybrook? From what I understand, they have the best Neurology unit in the country. I wish I had of known that before I went in for treatment. My hospital experience was horrible, GBS suffering aside. I later found out that the Newmarket hospital rated a ‘D’, which I would call a high grade for their Rehab unit.
AnonymousJuly 25, 2013 at 7:34 pm
My husband was diagnosed with GBS on May 27, 2013. He has constantly complained of the tightness in his abdomen; the hospital doctor was not sure if this was a relationship to the GBS. The tightness originally had a defined upper and lower line, but now that definition has subsided and the band has become wider, still experiencing tightness but not so concentrated, albeit very painful. He also complains about his ankles and wrists feeling like they are wrapped with an ace bandage. During his week in the hospital he was treated with IVIG. He has been referred to UCLA Neurological and Musculoskeletal department, with his appointment on August 2. I will post what the UCLA doctors say about the band around his abdomen. Tests also showed ‘abnormalities’ in the spinal fluid, but no diagnosis was made. I pray it is not Transverse Myelitis as well.
Jethro, sorry to hear that you were diagnosed with TM. What is your prognosis?
AnonymousAugust 3, 2013 at 5:49 am
Went to see the ‘specialists’ at UCLA today. The good news is that they think my husband does NOT have CIDP. And that is the only news they had. What else they said we already know: “recovery takes time and you may or may not walk again without assistance”. We were really disappointed; were hoping for some insight to his symptoms – especially the constricting band around his chest and abdomen – and tips for coping. Nada. Well, we live in California and recently got our ‘green’ certificate. Will be trying the gel caps or other edibles, as my husband is a singer and prefers not to inhale any smoke.
September 23, 2013 at 3:06 pm
I refer to that band of tightness as my boa constrictor. When I first got GBS, it was truly terrible. Everytime I tried to take a breath in, the band would tighten.
I’m a year and a half into recovery, halfway there and my boa constrictor still feels tight but not nearly as bad as it was. If I engage in physical exertion, I notice it more and huff and puff. Most of the time though, I only feel that it’s still slightly there, doesn’t hurt or squeeze badly anymore (thankfully!).
Can’t speak for anyone else but if my experience is typical, it will get tons better over time.
I’m so sorry to hear that your hubby is having to go through it again! Once is nasty enough. All the best to him!
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