Tension in cheek

    • Arnyeinstein
      October 10, 2025 at 5:46 am

      Hi
      I’m living with CIDP and experience tremors whenever I stretch my fingers, elbows, or arms—on both sides. Lately, I’ve also noticed an unusual tension in my lower jaw, especially when speaking or singing. It’s a strange sensation that’s hard to describe.
      Has anyone else with CIDP experienced similar jaw-related symptoms?

      Cheers

      Renger

    • MarionL
      May 6, 2026 at 9:34 am

      Hi Regner,

      This is my first relapse after being diagnosed in 2024. I also get a pain and tightness in my jaw and roof of my mouth (fun fact the muscles in your jaw connect to the roof of your mouth) I describe it as the feeling when you blow up too many balloons, kind of tight and burning. And my mouth gets tired while I’m eating, sometimes cutting meals short. I get tremors when holding things, and often feel like my bones are tremoring when I lay down or rest. Though it sounds ridiculous put into words. I love singing at church and to my children, so it’s definitely one of those demoralizing symptoms.

    • Arnyeinstein
      May 6, 2026 at 10:36 am

      Hi Marion

      Thanks for sharing. In the meantime, since August last year, my CIDP has been in remission, and I have no symptoms. I also sing a lot in various choirs and projects, so it was quite demoralizing to have jaw symptoms.
      Wish you the best.

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