Symposium is packed

    • Anonymous
      November 5, 2010 at 3:12 pm

      This place is packed this time.
      Over500 I was told.
      The facility is nice but not big enough to accommodate and gets all blocked up in the hallways.
      I had a one onone with dr Lewis
      Things overall a thumbs up

    • Anonymous
      November 5, 2010 at 4:32 pm

      Lucky you!
      Keep us posted.
      We are lucky to have you & Liz (maybe others?) there in our absence.

    • Anonymous
      November 5, 2010 at 5:16 pm

      Hi Forum members,

      Wow again, what a first day here. There were some new topics and studies going on. Alot of funding from the foundation it seems.

      so far we had Asbury, Gorson, Jacobs, Brown, Lewis, Willison(what a character) and Sheikh. did some good speaches.

      Gorson came out with a new categorizing system with an impressive 11% cure rate for CIDP. Unfortuneately he is big on keep trimming back the drugs and wait for relapse. As at the last symposium, he is big on people getting ivig and not needing it. he is optimistic they may be in remission and is willing to let the patient relapse then retreat. In a perfect world that may be ok, but when you can’t see them for like 3-4 months that don’t work. Anyway

      They filmed all the sessions that will be available online somehow, so everyone can watch it at some point.

      Saw and talked with Liz and Cathy, saw Markens and chatted a few moments.
      some familiar faces and alot of new ones as well. many first timers.–tim–

    • Anonymous
      November 5, 2010 at 7:29 pm

      Thanks for the letting us know what going on. Maybe next time…

    • Anonymous
      November 5, 2010 at 7:56 pm

      Love to hear what is going on. Wish we were there but hard to make it with a 4 year old. Please keep us posted. Jealous over the Lewis thing.

    • Anonymous
      November 6, 2010 at 7:40 am

      Dinner was fantastic! They had a real authentic mummer band perform for everyone. Estelle was honored by mayor Nutter, Gov Rendell and Obama with personal from each guy to her congratulating her on accomplishment
      And retirement.
      Day two starts in a bit
      Liz drank a bloody Mary with us last night!
      We had a blast–tim–

    • Anonymous
      November 7, 2010 at 9:32 pm

      Thanks for the update again, Tim.
      I’m jealous!!!

      Please let us know how to see the online versions, or if you hear when they will be available online. That sounds great!