surgery post gbs

    • Anonymous
      July 28, 2008 at 2:14 am

      Does anyone know if there is any increased risk with surgery post gbs? I dont have any ongoing symptoms that i think would make surgery any more risky than otherwise. Is there any link between surgery and relapses of GBS?Any info would be greatly appreciated

    • Anonymous
      July 28, 2008 at 4:31 am

      Yolande,

      You would think so, huh?? But, it depends I guess. Certainly consult your neurologist about it.

      In January, I had lung surgery (after carefully quizzing my primary dr. and neurologist about it inre. post GBS, which I acquired in Sept. 2004). I was concerned, especially the anesthesia part, but, all went well, so……..
      …….for what this is worth……..you should be ok.

      Good luck,

      Perry

    • Anonymous
      July 28, 2008 at 4:45 am

      thanks for your response perry
      I dont have a neurologist anymore – made such a good recovery when i left hospital he said he didnt need to see me ever again unless i wanted to see him!
      My GP admits she doesnt know much about GBS. I am just hoping they wont say i cant have surgery because of my history. Gues i;ll find out when i go to see the specialist.

    • Anonymous
      July 28, 2008 at 8:12 am

      Good morning Yolandie.
      I had a triple bi-pass 7 months after GBS. All I was told was that everyone was aware I had GBS. and the antithiseaoligst Spelled wrong. All she said was she was changeing a drug she uses while I was under. I was under for 6hours and on the heart lung machine for almost 2 1/2 hours. I have no side effects. in fact the pain I had in my back was gone. Again sound like a broken record and make sure everyone knows. My prayers are with you. one thing you do not want to take any imune shots. (etc tetnis, etc) (Steve)

    • Anonymous
      July 28, 2008 at 11:13 am

      I, too, have had surgery with no complications. I made sure everyone knew my history and that they were aware of my concerns, but I came through with flying colors. I didn’t have nearly as much pain as I had anticipated. Could this be because of the GBS? I don’t know. I usually feel pain more intensely.

      Good luck.

    • Anonymous
      July 28, 2008 at 11:47 am

      My neurologist told me that I was at no more risk than anyone else. I had a port placed, mastectomy and 2 cataract surgeries and all went well with each. As Steve said I made sure that everyone was aware but I never experienced anything out of the ordinary. Good luck with your surgery.

    • July 28, 2008 at 12:13 pm

      I posted a while back about my surgery. I made sure everyone who came near me and who was on the ‘surgical team’ knew about the GBS. After surgery I had issues with my BP. They couldnt keep me stable, it kept dropping and dropped once so low that it was (later found out) in the death/coma zone. Scared the heck out of every dr and nurse in the recovery area. Recovered nicely and quickly from the actual surgery and had no relapse…it was on my mind for a while though. Good luck and let us know how ya do okay?

    • Anonymous
      July 28, 2008 at 8:52 pm

      Likewise with what everyone is saying-I had my gallbladder out a year post and made sure everyone knew about GBS. I had an unusual reaction to the anathesia and had to stay in the hospital a whole day instead of a few hours, but came out just fine. Jeff

    • Anonymous
      July 28, 2008 at 9:35 pm

      I was told that the main things during surgery was that the anesthesiologist watch for blood pressure and heart rate changes. They definitely should know that you have had GBS and if you had problems with autonomic nerves such as affecting the heart and blood pressure or weakness of lung muscles so that you needed a ventilator. I did fine with surgery as well, but I made sure that people knew that if anything went wackey, it was likely because of the GBS and the fact that my system is more sensitive and less tightly regulated than it used to be (also known as normal).
      WithHope for a cure of these diseases.

    • Anonymous
      July 29, 2008 at 11:26 pm

      thanks for the replies guys. great to hear we are not really at any greater risk than anyone else. I thought maybe because i had been on a vent they may be reluctant to put me under GA or that any infection etc may trigger a relapse.
      i am not overly concerned – i got it following the flu in the first place and everytime i get a sniffle there’s a remote possibility it could happen again. Its only a minor procedure, i just hope they dont decide against it because of my history of GBS. Will definitely make sure surgeon and everyone else is aware of it though.