Sticky above about study

    • Anonymous
      August 12, 2010 at 8:07 pm

      I got the email last week and have emailed them two times and got no response. Has anyone gotten a response?

    • Anonymous
      August 14, 2010 at 2:37 pm

      Yes, I got a response, with attachments. They also said they needed further contact information, so I sent that to them…I got what appeared to be an auto answer saying I would hear from someone in a day or two.

      Be patient… I’m sure they’ve had lots of responses from us.

    • Anonymous
      August 14, 2010 at 6:39 pm

      Just got the e-mail today.

    • Anonymous
      August 16, 2010 at 3:44 pm

      Might I ask what this is a study for, or how to get involved in the study

    • Anonymous
      August 16, 2010 at 4:15 pm

      Looks like a good study.

    • Anonymous
      August 22, 2010 at 12:40 pm

      I contacted them and then got a response requesting medical records and EMG results. I had GBS 34 years ago and getting records is near impossible and EMG studies were not done at that time. I replied and explained that I was diagnosed at Johns Hopkins by spinal tap and clinical features. If any of you do get to participate, let us know the outcome.