Sticky above about study
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August 12, 2010 at 8:07 pm
I got the email last week and have emailed them two times and got no response. Has anyone gotten a response?
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August 14, 2010 at 2:37 pm
Yes, I got a response, with attachments. They also said they needed further contact information, so I sent that to them…I got what appeared to be an auto answer saying I would hear from someone in a day or two.
Be patient… I’m sure they’ve had lots of responses from us.
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August 14, 2010 at 6:39 pm
Just got the e-mail today.
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August 16, 2010 at 3:44 pm
Might I ask what this is a study for, or how to get involved in the study
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August 16, 2010 at 4:15 pm
Looks like a good study.
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August 22, 2010 at 12:40 pm
I contacted them and then got a response requesting medical records and EMG results. I had GBS 34 years ago and getting records is near impossible and EMG studies were not done at that time. I replied and explained that I was diagnosed at Johns Hopkins by spinal tap and clinical features. If any of you do get to participate, let us know the outcome.
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