Social Security Filed! Many Questions

    • Anonymous
      June 27, 2010 at 12:05 pm

      Hi Everyone,

      I know there must be tons of threads on this subject, but I have finally applied for Social Security disability. I have done the online part and have an appt. July 12th at local office. (Edit: I filed for sensory peripheral neuropathy and depression.)

      My first question is how many hours can I work for part-time while applying for SS? I have a sister that helps a bit financially, but have to have income to pay some of my bills. I got food stamps this past week and do have a limit of $1,100 a month of earnings for them.

      I know I will be turned down the first time then I need to find a lawyer. Since we have an illness with “but you look just fine” looking for suggestions on what I may face at first interview with SS and a lawyer. I have been using a cane so that will be with me.

      I haven’t seen a neuro in years and the last one thought I was just fine. My current family doc is aware of my problems but he counts on me for knowledge of these wonderful residuals. I am getting scared as the numbness in my feet is moving up my ankles. I’ve had this for over 13 years and am now 52… what will I be like in a few years with this progressing?

      This GBS forum family is priceless to me. I appreciate any ideas and help so very much!!!


    • Anonymous
      June 27, 2010 at 8:03 pm

      I have been there girl. Am praying for you. You should get a lawyer, who does SS only, you can look in the yellow pages & find one there. Your Dr. who knows about your GBS is better than the neuro doc you had. The SS Drs. & specialists are a group of people who will say you can work. I know nothing about how much you can work on SS. It sounds to me like you could have CIDP, don’t take my word for it seek a pro. You need a new neuro doc. Praise the Lord you got food stamps!
      Love & gentle hugs, smitty

    • Anonymous
      June 28, 2010 at 12:28 am

      I got mine the first try

      I found it has everything to do with what your doc tells them. They told me they rarely go against another doctors opinion.

    • Anonymous
      June 28, 2010 at 10:33 am

      Good Luck!
      I wish I had some information of the kind you are needing, but I don’t.

    • June 28, 2010 at 2:06 pm

      I hope you receive you SSI without too much trouble. I don’t know exactly what it takes, but if you find the right doctor and the right attorney I think it would help and getting all the information you can ( as you are doing by asking question) should help too.
      I wish you the best and offer my prayers.

    • Anonymous
      June 29, 2010 at 8:43 am

      SSDB “Social Security Disability Benefits” is what you need. SSI is Social Security Income. SSDB is more income. Praying for the best, Love, smitty

    • Anonymous
      July 18, 2010 at 3:43 pm

      I am going for SSD. So far I’m filling out all of the paperwork – which is a chore and I have to taken frequent breaks (and I told them that on the forms). I initially put down a friend that is aware of my illness and she called today because she had a huge amount of paperwork to fill out also.

      I’m being totally honest and putting as many details that I can remember on these forms. And this is what I asked my friend to do.

      When I filed the initial paperwork and went to the SS office, the very nice case worker lightly commented that they will probably have me see their doctors which is fine because I do not have a neuro. I called my GP doctor and he said a neurologist would have to write a letter – not him. That’s okay but he does have a lot of information on file and I’m sure they will be contacting him.

      I’m not religious but very spiritual… anything is possible with the power of God! The case worker did tell me how much lawyers make from these cases which made me think she was telling me I didn’t have to have one to win.

      One step at a time… meanwhile, I am trying to find a part time job that will pay just under $1,000 a month to keep me eligible for back payment to Oct. 2008. I did interview for a full time job that sounds great and the benefits were totally amazing… they won’t know for a least one month who they will be hiring so I got a little time break with them. I also interviewed for a part time job and did not have the nerve to tell them the truth of why I wanted part time. After the interview I came home and sent them an email thanking them for the interview and explained my situation. I cannot tell a lie and now I can sleep better. I asked them to please still consider me.

      Whew… got some good venting with this post. Thank you for listening my friends! (and of course look for your comments and advice)

    • Anonymous
      July 20, 2010 at 2:39 pm

      That’s great Chrissy, don’t forget to make copies of all the papers you fill out. Lawyer’s share is 25% of your lump sum. But think of it this way “you may be denied SSDB without one”

      Love, smitty

    • Anonymous
      July 20, 2010 at 5:51 pm

      Venting? This sounded like the cool headed thinking of a woman with a plan and a purpose.
      I am sure that the SSA will make you jump thru many more hoops. Good luck.
      Hang in there. We are all here for you in spirit if not in person.

    • Anonymous
      July 21, 2010 at 3:05 pm

      I had the worry that I would be turned down the first time too. I went to apply, took my nueros diagnoses and my second neuros confirmation and it went thru fine. The SS dept is learning as in anything else about the devistation of this disease. I also took a copy of the GBS/CIDP paperwork I got from the foundation with me. Their reply was they didn’t know the seriousness of GBS. God Bless.
      Pat George

    • Anonymous
      August 2, 2010 at 2:41 pm

      SS sent me a 20 pager to fill out with details about my daily activities, etc. They also sent my friend some questions (I listed her on the initial form as someone who knows about my health). And, yes Alma, I did make copies of my forms.

      So what comes next? Do they get my medical records? I know my records don’t show what is going on with me correctly as we all know most docs don’t know about this stuff. I’m praying they will send me to their docs so I can get a complete analysis instead of one arm or leg at a time.

      Hanging on to the prayer that I go forward with the grace of God! I so appreciate everyone’s support here 🙂

    • Anonymous
      August 3, 2010 at 3:55 pm

      I have not filed yet, but I have been told by my Long term Disability insurance that they take care of all the paperwork for me and the lawyers. I am not sure what the catch is, but I know the benefit to them is the less they have to pay out to.

    • Anonymous
      August 5, 2010 at 8:53 pm

      That’s great that your longterm ins. takes care of all your paperwork & SS & lawyers! Tell us about them!

      Love, smitty