Shout Box!
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Just went in for new AFOs, as the others didn’t fit from the weight lost. They’ve come out with some pretty styling new ones. I’m so happy!!! Can spend more time on my feet without the fear of falling down, no bruises, and they actually fit in a normal pair of shoes. I went for a walk in the park to see the leaves turning colors and didn’t even care how cold it was!:D It’s the simple things! -
AnonymousNovember 1, 2006 at 6:04 pm
[QUOTE=cidpvic]Hi Norb, I also feel very welcome here, that’s not what I ment to say! Maybe it’s just the way of expressing yourself in another language. There are Dutch forums too, but I feel most comfortable here.;)[/QUOTE]
I know what you mean. I’ve lived over here for over 40 years now but there are times when I still struggle. I am on a German forum but I don’t like it much. There isn’t a lot of participation. It moves at a snail’s pace, maybe because it uses outdated programming technology which surprises me.
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AnonymousNovember 2, 2006 at 9:50 am
Weather for today is saying we could have lake effect snow! (About an inch!)
Why am I so happy? ๐ Last time we had snow I was laying in my hospital bed wishing I was at home to shovel the snow and sweep my walks! Well here I am at home! What am I thinking? I hope it melts fast in the sun, so I don’t have to go out there and clear the walks! LOL I guess I am never satisfied or should I watch what I wish for?
It is nice to go in the stores too and hear the Christmas sounds coming from decorations and seeing the merchandise being put on the shelves! I am looking forward this year to actually preparing my own Thanksgiving and Christmas dinners!
Where has this year gone? ๐ฎ
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AnonymousNovember 2, 2006 at 11:47 am
LadyKITUSA,
Oh how I know what you mean about the snow! I am jealous …
I was also in the hospital last year when we got snow in VA. I remember lying in the bed and not being able to get up and go look out the window. I could only see a little bit of snow falling through the blinds. It kept my mind occupied while I was “trapped” in bed. I found watching the snow very restful but it also made me sad because I missed thanksgiving, my daughter’s first snowfall, and her first birthday during that time.
I am also looking forward to remembering Thanksgiving and participating in Christmas preparations and having a 2 yr old birthday party (more for me than her).
Hard to belive it has been a whole year already — we definately have something to be thankful for this thanksgiving!!! Enjoy watching the snow melt!! ๐
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AnonymousNovember 13, 2006 at 10:56 pm
I want to yell at all of my friends and family who keep telling me to take it easy!! I know they love me and are concerned. But, I know my body, what it can handle, and know when to stop. I just wish they would let me decide. For criminy sakes, I’m 42! Not 4!! I want to physically help do things, and everytime I do, somebody interferes and does it for me! AAAAAAAAHHHHHHHHHH!!!!!!!
Thanks for letting me steam!
Dennis- The name now officially means, “The one who CAN do stuff still!!”
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AnonymousNovember 16, 2006 at 12:06 pm
hello everyone
it has been a while since i came here ….. I want to wish everyone a good day and a beautiful weekend .Dennis…… I understand how you feel BUT just emagine if you didnt have a lending hand ! I would like my family …especialy for my husband to help…moslty support . Its so hard copping alone emotionaly and physically .
I suggest you try and tell them how you feel . Slowly they will let you do things for yourself when they feel sure you can , I know you feel you can do things in the house as you said ” I know my body ” but its difficult to convince them .Give them some time .take care all
maria -
AnonymousNovember 17, 2006 at 7:59 am
The 22 high school students came to my work for a tour of the electronics program. They had a great day visiting all the programs. Especially the free lunch and the laser program. One of students dad’s work in the automotive program and so they spent the last few minutes there. I enjoyed having them.
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AnonymousNovember 18, 2006 at 4:38 pm
Lisa and Maria,
I was having a bad day that day. Most of the time, I am very appreciative of my family. And I should be all of the time!!! They do love me. I know that for sure!
If you want me to hobble over there and smack someone to get them to help you, I will!
Keep on keeping on!! We support and care for you!!
Dennis
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AnonymousNovember 22, 2006 at 12:23 pm
Happy Thanksgiving to my other family! I am looking forward to tomorrow. It will just be my mother and I since my dad passed last month and my husband has to work. We’re going out to dinner and plan on spending some quality time together which we haven’t been able to do much in the past. Hope you all have a blessed day. Vicki
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AnonymousDecember 1, 2006 at 6:24 pm
[FONT=”Century Gothic”]Well I am in the last of my vacation, I had it luck on one aspect. As I took it the wk after the Thanksgiving holiday, but on the unlucky thing my wife went in the hospital last Sat. & got out on Wed. So it wasn’t such a good vacation.[/FONT]
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AnonymousDecember 5, 2006 at 12:14 pm
I need to SHOUT also![COLOR=seagreen] My husband is having surgery tomorrow, he called me this morning to tell me we are having dinner at his parents house tonight. I know that doesn’t sound bad but what makes me mad is ALL the stuff that I had to have my husband do before he becomes incapacitated from the surgery is not going to get done. He is a really bad procrastinator and put off doing the IMPORTANT stuff until tonight, now there is no time to put up the xmas tree for the kids, help clean up the living room and kitchen and get ALL of his things together like his cpap machine, clothes and everything he needs for the hospital. There was plenty of time to have had a dinner with his family and celebrate a birthday in the family last sunday-but no one did anything about it, they waited until the night before his surgery to have it. Just another instance of my in-laws not thinking and knowing my energy and fatigue levels. I’m at the point of telling the nurses that I don’t want my husbands family to visit while I’m there with him in the icu. Brian and his sister have been worried for the last 2 months about the stress levels in our home after the surgery, it even involved his mom telling him he can stay at their house while he recovers—who would this help? it would cause my kids to go through major stress not having their dad in the house, not being able to be there for me if i had another relapse and let alone the fact that he won’t be able to talk to the kids if he or they want to talk to him. I am really in the dark to see how this arrangement would keep the stress down.[/COLOR]
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[COLOR=#2e8b57]Sorry All, I just had to get it out, its not doing me any good inside.:( Thanks!!:) [/COLOR] -
AnonymousDecember 6, 2006 at 4:08 am
Cheryl,
With an understanding family like that, who needs enemies?
Did you ever try to sit down and tell them about your fatigue problem and how they can best help the you and your small family?
I certainly understand your need to shout! I wish I could find words for all the things I want to shout about.
I FEEL AS IF MY WINGS HAS BEEN CLIPPED – I CANNOT DO THE THINGS I WANT TO AND USED TO!
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AnonymousDecember 6, 2006 at 8:04 am
Cheryl,
Most feel it is hard enough with the medical/physical issues with GBS and CIDP just to finish each day. Other issues just add more to our already full plate. Sorry to see you have other issues added to your plate. Ninus closing statement says it very well for me too.
Thanks for sharing and my prayers are with you.
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AnonymousDecember 7, 2006 at 2:54 pm
Thanks for the encouraging words and thoughts all. i needed that!:) brian had his surgery and it all went well until he had a few complications coming out of the anesth. he is home right now. i tried explaining my residuals and everything that goes along with this gbs stuff, i was told by my s-i-l that it probably is my mind making me go paralyzed.:mad:
brian had nose surgery-deviated septum, tongue base reduction, tonsilectomy, excess throat tissue removed and uvula removal. he is doing ok when he listens to me, its a wait and see recovery period that can be the hard time now.:eek:Thanks for making me feel better everyone!! you guys are GREAT!!!!:)
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AnonymousDecember 7, 2006 at 6:11 pm
I am happy for you that you have your husband home again. Hope everything works out well.
[QUOTE=angel2ndclass22699]i tried explaining my residuals and everything that goes along with this gbs stuff, i was told by my s-i-l that it probably is my mind making me go paralyzed.:mad: [/QUOTE]
As if you wished to be ill:( There is enough to discuss in this single quote to fill an entire new thread! I am ๐ก on your behalf.
When I have just explained what is wrong with me, people all say “you look so well!” – read “you do not look ill at all”. That really ticks me off. I answer “thank you” and smile. I have not yet found a proper way to respond or vent my anger.
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AnonymousDecember 11, 2006 at 3:40 pm
I want to shout!!!! thanks.
i am new to the cidp. i just got the called from my new neuro, ivig to start. he sounded pleased, maybe because we finished all the testing. ncs/lp and all. spending five days in the hospital doesn’t sound like fun to me!!! i know there is a big piture here but poo!!!!! any advise for my stay? -
AnonymousDecember 11, 2006 at 5:04 pm
I have to shout with joy ๐
Our youngest, Patty, is getting her Masters this weekend. Carolyn, my wife, and I will be there when she walks. You donโt know how proud we feel to see how far she has come. She was born severely deaf and has never let that slow her down. ๐ She teaches in Atlanta Ga. -
AnonymousDecember 15, 2006 at 9:52 am
hi john,
well you are just like my husband, wait till the last minute, sometimes he goes shopping christmas eve!
i don’t know what your wife would like but i can tell you what i asked for this christmas, a new watch, some new CD’s (which my son can make), my car to be detailed for me, gift certificates from barnes and noble and my local scrapbook store (i make them for income) and i asked to go on a date with my husband (dinner and movies).
well i don’t know if this helps you but i thought i would share. good luck with the shopping crowds! Have a great weekend all. -
AnonymousDecember 15, 2006 at 5:49 pm
Lisa, Her car could really use a detail job. I think that would be a good idea. On our anniversary I took her to see a movie that was playing at a theater about a 2 hour drive form here and to her to a restaurant we both like.
Chrissy, Diamonds were the other present she got for our anniversary.
Thanks those were great suggestions.
You are right I do wait to the last minute to go shoping.
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AnonymousDecember 16, 2006 at 11:09 am
morning all,
it is a great saturday, i am getting the outside of my house painted today!!! so excited, before christmas is GREAT! Oh by the way, it is 74 degrees here today with the sun shinning.
Oh John, i thought of another gift idea, one i got last year, a gift certificate to a spa, it was great!!!!!! -
AnonymousDecember 28, 2006 at 11:44 am
[IMG]http://www.bluemarble.de/forum/scream.gif[/IMG]
Help. Carol had to take her mom to an appointment. I have to babysit my two nephews (2 & 4) right out “Supernanny”. My sister-in-law sent them home with us so they could get one more day in of skiing in the Rockies.
My patience is wearing thin. I occupied them for a while but their attention span must be that of a fly. They are into everything, scream, fight. The older one just figured out how to unlock the childproof gate to downstairs.
Please, send me the “Supernanny”!!!!
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AnonymousFebruary 1, 2007 at 12:04 pm
I just want to know how can a dr treat you properly if they don’t have your old records in front of them?!
i don’t understand how the medical records dept can’t do the job they are there to do! and i use to work in the dept and i know they are supposed to deliver all charts to the drs office for all appts at least three days ahead of the appt date—so why doesn’t my dr have my charts in hand to treat me!?
i feel alittle better now-just had to relieve some pressure before i called the hospital ceo and complained again! thanx.:) -
I am glad you had a great week! Kevie has too! Do I dare hope this good trend continues? Dawn
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AnonymousMay 26, 2007 at 9:23 am
[FONT=”Comic Sans MS”][SIZE=”4″][COLOR=”Blue”]All the grades are posted, all the inventory is done, all the books and supplies are order, the keys are turned in and the end of year checklist is completed and signed off!!!! Summer vacation here I come! ๐ ๐ [OK, at a rather slow pace] ;)[/COLOR][/SIZE][/FONT]
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I have to mention a little something about teachers! I love them! Had it not been for Kevie’s three teachers this year, I do not know that he would have made it through metally! His homeroom teacher is only 25 and has the grace and maturity of a fifty year old teacher! Teachers have to teach, parent, referee, care and a multitude of things! Hooray for teachers. I wonder how many people realize that teachers really are the hope for the future! Teachers spend more time with children than their parents sometimes! Can you tell I love teachers! Dawn Kevie’s mom ๐ฎ
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AnonymousDecember 14, 2007 at 8:06 am
Starting the Christmas party season. Yesterday was the first. We had a local high school choir come and sing. Very well done with lots of traditional christmas songs and a raffle to support the local food bank. It was a great start to the christmas season.
Merry Christmas to all..
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AnonymousJanuary 5, 2008 at 1:41 am
If this is the shout box then I am shouting.
I hate people that are deceiving. One of my co-workers that pretends to care is a back stabbing hag.
My husband never tells me that I am pretty. Maybe I’m not to him. I’d like to shout so that he would tell me once in a while. He’s very good to me…but, maybe I have changed too much over the years. Maybe I am too frumpy. I want to shout “dont say it unless you really mean it”.
I’m not 20 something anymore.I’m shouting that I am tired of just existing !
ok, I feel better.
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AnonymousJanuary 20, 2008 at 2:02 pm
&$# #@*& son of a #$@%, I can’t believe I got %$#&*%$ flat tire and even the $#%@&%$ “fix a flat” didn’t do the trick.
My fat a$$ having to kneel down in the $#@#$&^% limestone and try to get the $#@ #$@&%$ jack to sit properly so that my crippled a$$ could change the $#@%#$ %$#&*$# tire.
Now, hows THAT for a “shout out”
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AnonymousFebruary 17, 2008 at 9:05 am
A friend let us know about a situation with his wife. She underwent major surgery for a broken prosthesis in her right hip. She has artificial joints in both shoulders and both hips.
Following six weeks of rehabilitation after 19 days in the hospital in August, she broke the femur where the new prosthesis was installed.
Back to the hospital to undo the previous surgery and put in a 10 inch steel plate which the doctor said could hold up the Empire State Building. He lied.
Because of the two surgeries so close together, the doctor cannot operate again just yet. Additionally, while she was on the operating table the doctor was completely unable to bend her knee in her right leg because the cartilage has been totally eaten up by Rheumatoid Arthritis.
It appears all but certain that she will have to undergo surgery again.
Boy, are they in need of prayers.
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AnonymousFebruary 29, 2008 at 9:12 am
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I did not mean any disrespect to our members from outside the United States. I was only borrowing a line from Paul Harvey….who every Friday, gives me that message when he begins his broadcast.
Please, please don’t take any offense as there was none intended. I wasn’t thinking when I hit the submit reply button!!!!!!
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AnonymousMarch 19, 2008 at 4:03 pm
Last Sunday hubby and I parked our car in a parking-lot outside a flower shop to buy my mother-in-law some flowers. We do that at the same shop almost every Sunday. Usually in Norway you don’t have to pay for parking on Sundays, so we didn’t bother to place my disability-card in the window of the car either. Most places this card entitles you to free parking at all times.
When we returned after 5 to 10 minutes, a “meter-man” was busy scribbling a parking-ticket on the hood of our car. Hubby ran up to him and asked him why he was doing that on a Sunday, and he pointed at a sign where it was written that you had to pay at all times, because this parking-lot was run by a private company and not by the local authorities. So I said to him that of course it was our fault not to have put my disability card in the front window. So far so good!
What really ****ed me off was when the “meter-man” replied that it wouldn’t have made any difference, because it wasn’t valid at their parking-lots! I guess you know how I felt on hearing this, so you can understand that I shouted after him that he should know he was working for a company spawned in h***! And when we looked at the ticket and saw that we had to pay the equivalent of $140 in Norwegian money I almost felt queasy! I still can feel it when I re-live the situation writing it now, several days later.
It’s frightening, really, when money matters more than people, and it happens all the time, even here in Norway where we are supposed to have a more lenient system. Tell me if my reaction to this is because I’m a spoilt citizen in a Social-democratic state with a well developed welfare system?
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AnonymousMarch 20, 2008 at 10:18 am
Allaug ~ I am not familiar with the “system” in your country. Here, I would take my chances on talking to a judge before I would pay the fine. In the USA that would be discrimination against the disabled and the company would receive a warning and perhaps a fine. You go, Girl!!
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AnonymousMarch 21, 2008 at 10:04 am
[FONT=Comic Sans MS][SIZE=4][COLOR=blue]Allaug sorry for everything your having to deal with on this subject. I don’t even want to get started on that subject, I had one too many problems dealing with the issues of Handicap or Disabled Parking when Debbie was living. I got mad so many times over the subject. Just Remember I’m Pulling For You ! ๐ [/COLOR][/SIZE][/FONT]
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AnonymousApril 2, 2008 at 4:43 am
OK, I’m shouting! Who was the idiot in government that decided not everyone will get their “rebate” in the form of cash!! One family in Arizona has received an air conditioner because someone behind a desk decided they needed that more than the money to save their home from foreclosure. When contacted, the agency said that this would affect [I]only[/I] about 1 million people. This was reported on NPR today.
It is time for the citizens to take back our country and have a true democracy once again!!
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