? SGPG and anti-MAG antibodies

    • Anonymous
      March 4, 2008 at 12:31 pm

      Md states I have the above anitbodies and these typically are a slow,
      but relentless neuropathies, where my clinical picture is typical CIDP.
      Does anyone else have or know about these antibodies?
      CIDP dx is also based on high CSF protein levels and Nerve Conduction
      and EMG testing which showed a severe degree of demyelinating
      So glad to have this up and running. felt lost without my lifeline.
      CIDP, Nov. 2007

    • March 4, 2008 at 12:50 pm

      Hi Beth,
      Well, it looks like Norb is your man, he is the authority on anti mag. Try reading his posts and his journey, maybe they can give you some insight. I am glad you have a clearer dx and hopefully the new info will lead you to a treatment plan that helps you. Best wishes!

    • Anonymous
      March 4, 2008 at 7:55 pm

      Beth, how did your mri’s turn out? Sorry if I missed that somewhere, but I was thinking about you and wondering.

    • Anonymous
      March 8, 2008 at 5:09 pm

      Hi and thanks for asking. I have a herniated disk at L 5, a start of one at L 4and two hemagioamonas at L 2 & 3.
      Md says the herniated disk could be the cause of my low back to both knee pain, but that we are not going to surgery at this time so i need to learn to live with the pain/discomfort. That surgery would increase my CIDP symptoms and it is not worth the risk unless it is emergent surgery.
      My CIDP has not stablized at all in the last four months. Will have the fifth tx
      of IVIG this week and again in April. If no change then, he will start Plasmsphresis in April.
      So, i’m learning to sleep in a different position and use pillows.
      How are you