Sessions At Symposium

I attended the session on CURRENT RESEARCH and I listened with great interest to one of the speakers when he spoke about CIDP. I don’t know if I should name him, may invade privacy, but you can find some info if you google in CDAS/CIDP or type in CDAS and CIDP.

I found out from this doctor what status I am in. This doctor used the word CURED. I have been off all treatments since 2003 and though I don’t get better, I have maintained and don’t get worse.

I am post 5 years and CURED from CIDP with residual deficit’s. I now know from listening to Dr. G that I had severe axonal damage which cannot regenerate and reconnect with targets such as muscles (weak) and skin (numbness).

It was posted in CIDP group on facebook that this year recordings/tapings were made of each session by our foundation so watch for notice when they become available.