rheumatolgy came back possitive for….
AnonymousDecember 8, 2009 at 7:45 pm
sjogrens. Primary sjogrens causes cidp, gbs and other peripheral neuropathies. IT has also been known to be a differential of MS. but I am been looking at the tests for the past 7 years and SSB and even ANA was normal so it isnt what caused my cidp but rather it is the new second disease I have talking about for the past three months. one down and one to go. This complicates thing but kens doctors office rescheduled me for earlier on friday and I hope He can sort this out. THen after I will see a rheumatologist at scripps. Oh well. At least no one can ever call me crazy or hypercontriac ever again.
AnonymousDecember 8, 2009 at 11:31 pm
I too recently tested positive for sjogren’s… I don’t know what it all means. I also have necrotizing sarcoid granulomatosis, and decreased respiratory function due to scarring and nodules in my lungs.
These diseases all are rotten!
My only solutions: pray hard, live well, eat well, exercise moderately and then rest, smile and cry, and love!
I hope you get some answers and can move out of the mystery stage into the living with it all stage. That’s what I’m trying to do too!
AnonymousDecember 9, 2009 at 1:35 am
thanks for sharing that. were you possitive for the ds DNA or just SSB. the doctor said the one that indicates organ infiltration is dsDNA. I was negative for that. I had numb patches in my knees and feet so I really want to rule out vasculitis now. I havent had to take any Xanax lately but I think I will refill my perscription now.
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