Recommend a good GBS Neurologist?

Oh Babe, I hope you can find one ……… some of us just cant seem to find anyone who knows a “decent” amount about gbs ……..:(

KY either the University of Kentucky Hospital at Lexington, or the University of Louisville Hospital for a referral neurologist experienced in GBS located in your area. U of L Neurology Dept is a teaching hospital…an excellent hospital for GBS/CIDP and other neuromuscular diseases. see Dr. Ismail. Ph 589-0802
Department of Neurology A Building, Room 113 500 South Preston Louisville, KY 40202
Phone: 502-852-7981 Patients and Referrals: 502-589-0802 FAX: 502-852-6344 Email:asamia991@msn.com

Another excellent group in Louisville: Louisville Neurology Associates, P.S.C. Doctors Office Bldg – Suite 202
250 East Liberty Street Suggest Dr. Roy Meckler PH: 502-589-6177 FX: 502-589-6172

Dr Arman Sabet at the Kentucky Clinic,Dept. of Neurology. It is part of UK. lexington
The phone # is 859-323-5661. We really like him and he does listen to you.

take care. be well.
gene gbs 8-99
in numbers there is strength

at times when a doc is in over his head he can’t think outside the box & therefore finds something he does know & says that’s it. anxiety doen’t fit here. get an emg/ncv & he’ll change his tune. take care. be well.

gene gbs 8-99
in numbers there is strength

Anyone know a well informed neuro in New Zealand please let me know. The nurses seem to know so much more as to the treatment and care of GBS sufferers, maybe we should ask them, they are on the shop floor so to speak….

There are two GBS contacts in New Zealand as far as I can see. If you contact either one or both, maybe one of them could point you in the right direction.

Mr. Terry Watton
Paeroa
07-862-6438

and

Mrs. Jenny Murray
New Plymouth
06-751-1014
[EMAIL=”jenny.gbs.nz@clear.net.nz”]jenny.gbs.nz@clear.net.nz[/EMAIL]

I don’t know how far you are from Birmingham, AL, but I feel that I received excellent care for my GBS at University Hospital there. It is a teaching hospital w/in the UAB system.

🙂 I will send an email, I was a member with them before and got their newsletter, I know they mean well but felt it was not very helpful or informative like their website.

and Terry started the NZ organisation before handing it on to Jenny.

Sorry to hear that Mike. I had their names in the Chapter Directory under International Chapters. Unfortunately yours isn’t the first story I have heard where people have found contacts to be unhelpful.

babeprice:
my husband has not found a doctor in East Tennessee yet. Has been to two and neither has done him any good at all. His family internest has done more.
He needs to be diagnosed . Both said perphical neuropothy (sp?) From all we have done ourself we believe he has cidp. We just need someone with the knowledge to diagnosis him hopefully with the spinal tap. We have found one doctor recommended by another patient but since he is in one of the groups where my husband first went they refuse to let him change to another doctor.

If you have found one please let us know. Lafare is the doctor he wants to see. we now have no place to go. He has had the symptoms for 22 months now.
Can anyone help us.
Joanf:(

hi joan & welcome,

these are the closest i have.

KY either the University of Kentucky Hospital at Lexington, or the University of Louisville Hospital for a referral neurologist experienced in GBS located in your area. U of L Neurology Dept is a teaching hospital…an excellent hospital for GBS/CIDP and other neuromuscular diseases. see Dr. Ismail. Ph 589-0802
Department of Neurology A Building, Room 113 500 South Preston Louisville, KY 40202
Phone: 502-852-7981 Patients and Referrals: 502-589-0802 FAX: 502-852-6344 Email:asamia991@msn.com

Another excellent group in Louisville: Louisville Neurology Associates, P.S.C. Doctors Office Bldg – Suite 202
250 East Liberty Street Suggest Dr. Roy Meckler PH: 502-589-6177 FX: 502-589-6172

Dr Arman Sabet at the Kentucky Clinic,Dept. of Neurology. It is part of UK. lexington
The phone # is 859-323-5661. We really like him and he does listen to you. take care. be well.

gene gbs 8-99
in numbers there is strength

Carolina’s Medical Center!!!! 2nd largest healthcare system (at least on East coast). Learning Hospital. Large Neurology dept. with both pediatric and adult experience in GBS (my son being the most recent and youngest 17months). Try the Charlotte Downtown branch (main branch).

Thanks Gene: It has been a struggle but we do have one now but I will keep you info in case we get another opinion.
Thanks