Quinine Availability

Hi
I was on Quinine for almost 4 years from1990 thru 1995 it was the only thing that helped with the leg cramps. Even back then, around 1995 I was told it was no longer going to be available for that purpose. Maybe it will only be a short time before it is approved again by the FDA. Good luck and God Bless

The fda is trying to put the kabash on any med or untested and unapproved treatment. that doesn’t necessarily mean you won’t be able to get quinine in the future, because it is used for other health issues. there are other benefits from this treatment. off label use is under the microscope on many herbs/meds, its a wait and see situation for many meds.

Quinine is in tonic water, but I don’t know how strong it is. Unfortunately some tonic waters also include artifical sweetener. ‘A nice little earner’.

I’m reminded that St John’s Wort was banned somewhere – it helps with depression. I can only imagine that they are banned – because they work. Thus a drug company could make good money from them, following American FDA approval.

Lavender will probably be banned soon – Monsanto can buy a patent for it (hopefully, not in any other country). They can also genetically alter it – and make a fortune selling it

Personally, I think that there’s other stuff that could do with being banned – not medicines, herbs etc that were in use long before Western-style medicine, FDAs etc.

God bless

Hi fellow San Diego Countier…
I remember when I have gone on safari’s to Africa, quinine was used for Malaria.
What difference does it make, if your doctor prescribes quinine for Nate, quinine under the possibility that Nate has Malaria, (of course not being true), or if he prescribed it for muscle spasms, that you say the FDA is cancelling the use of quinine for.
Perhaps your doctor can prescribe a “little white lie”…lol.
—
At the moment, I am also dealing with very bad muscle spasms, especially in the temple/eyes/face areas, and legs. I had been on Felxeril 10mg three times daily for the past 3 years, which had been working well. But now, no longer. I asked my doctor if perhaps my body had gotten too use to it, and he told me no, it was the progression of the disease. So, he said the Flexeril dose was at it’s highest, so added Valium 2mg to be taken with the Flexeril each time through the day.
I have been on that for about 1 week–so far so good. I have anemia with the CIDP fatigue, so I am tired anyways through the day. But the two meds together have not made me any more tired than usual.
Take care,
Kedaso

We had trouble finding Quinine at the first Walgreen’s we went to. The pharmacist told us that since it’s such an old drug and is really just used for people undergoing kidney dialysis, it doesn’t generate enough money to justify large pharmaceutical companies wanting to supply it. The pharmacist made a few phone calls and did end up finding a CVS nearby that still had it in stock. However, when we got there and gave the pharmacist Ben’s script, she didn’t have the entire supply. She was able to get the rest of it though, and we went back for it a week later.

I also called and spoke with a different pharmacist at Walgreen’s, and she called back later to let me know she was able to have Quinine delivered to the store and that it was now in stock.

Quinine absolutely does help with muscle spasms. I’m not a doctor and normally wouldn’t make a statement like that, but I’ve witnessed it first hand with Ben when nothing else was helping.

Good luck!

Shannon

Hi

Re quinine. Nate’s Mum said “It amazes me that if it works so well, why would the FDA not just leave it alone”. But that is surely why they would intervene. If it didn’t work it would not be a possble money spinner for someone.

Nate’s Mum also said “Next they will be trying to prevent us from getting vitamins”. Well, they are probably working on that and I am not trying to be funny. Especially as some vitamins, taken in large doses – as many people do – are detrimental to your health. An example would be:

Beta carotine – found in leafy veg and carrots – it protects against the likes of lung cancer. Yet, taken in large doses regularly, it can promote llung cancer – this was discovered 8 years into a study.

God bless
Again, Vitamine A in large dos regularly is not a good idea.

God bless

i got a letter from my insurance company telling me that it was not going to be available any more. the fda was pulling it because of problem people had when they were on it. i called my neuro and she is looking for a replacement for me. she told me that quinine was found to help muscle cramps but it was 1st made for other issues. neurologist use it for the cramps.
i hope i can get it refilled. i am out today.

hi trudy, has nate tried flexeril and diazepam together? that is what worked for me. i would take them along with my larger dose of neurontin at bedtime-helped relax the muscles enough to get a couple hours of sleep anyway.

Hi Trudy,
Sent you a post, Look under Help first time in.
best wishes,
Peggy