Quick result from IVIG Loading dose
AnonymousApril 10, 2013 at 2:29 pm
Long time lurker, first time poster. I have had CIDP for more than three years, so when my fourth neurologist prescribed the IVIG, I was pretty skeptical: $3500 in deductibles for something that was probably too late.
I started having trouble with my breathing muscles, quashed my doubts, and whipped out my credit card.
The first infusion gave me a bad headache, but by the next morning, one of my feet felt like a foot instead of a hot brick for the first time in years. I had several improvements over the loading dose period, including visual, balance, grip, and walking speed. The need to gasp and yawn went away after the fourth dose.
I know it’s unusual to get so much back so soon, and most people who post about IVIG tell about it not helping, so I wanted to put this out here.
It’s a tradeoff: the numbness receding makes the pain more real, and it actually hurts like it did when I first fell ill. Plus the headache and flulike infusion side effects are not fun. I still think it’s worth it.
AnonymousApril 25, 2013 at 8:57 pm
I had a similar response when I was first treated for GBS. Within hours of getting my first IVIG infusion, I recovered movement and strength in my arms. With each successive treatment, I got more and more back until I was about 75% of normal after the 5th and final infusion. I’m hoping for the same results the second time around as I have just found out that I am most likely having a recurrence 🙁
In the end…don’t question why you are having such a positive outcome, just enjoy it 🙂
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