Quick result from IVIG Loading dose

Long time lurker, first time poster. I have had CIDP for more than three years, so when my fourth neurologist prescribed the IVIG, I was pretty skeptical: $3500 in deductibles for something that was probably too late.

I started having trouble with my breathing muscles, quashed my doubts, and whipped out my credit card.

The first infusion gave me a bad headache, but by the next morning, one of my feet felt like a foot instead of a hot brick for the first time in years. I had several improvements over the loading dose period, including visual, balance, grip, and walking speed. The need to gasp and yawn went away after the fourth dose.

I know it’s unusual to get so much back so soon, and most people who post about IVIG tell about it not helping, so I wanted to put this out here.

It’s a tradeoff: the numbness receding makes the pain more real, and it actually hurts like it did when I first fell ill. Plus the headache and flulike infusion side effects are not fun. I still think it’s worth it.