question, question, question…….

    • Anonymous
      June 15, 2006 at 1:14 pm


      as i have observe on my reading, all of you, until now is getting ivig theraphy???

      while me i just take the ivig during the days i am on the icu, for 5 times a day and that is so costly for 5 days also, after that i dont take it anymore….

      what do you think? do i still need it?

      help me pls…. its hard to have this illness, on the country who is not expert on this illness….

      pls…. help me what to do….

      i want to walk again….or even just improved my balance….

      pls…help me….advice me what to do…..

    • Anonymous
      June 15, 2006 at 2:50 pm

      The people who continue to get IVIG long-term are usually the people with CIDP. If you had GBS and were given IVIG in the hospital and maybe for a short time after and it was stopped, perhaps they feel the attack on your myelin and nerves has stopped. So now as your myelin regrows and your body heals, what you need is physical therapy overseen by your Neuro to help build up your muscle and strength. I hope that helps.


    • Anonymous
      June 16, 2006 at 1:02 am

      thank you jerimy,

      you takes away my worries…

      i love you!!!:)