AnonymousApril 18, 2007 at 12:42 am
I am wondering if any of you have issues with not sweating after GBS. I got GBS Aug 2005 and now I don’t sweat. Last month I flew out to LA and worked out with Richard Simmons and didn’t even sweat! I get hot and dizzy but don’t sweat. I also have trouble getting my heart rate up. Does anyone else have problems with this?
AnonymousApril 18, 2007 at 10:06 pm
Thanks for the response. I actually ended up going to the doctor today because I feel my neuropathy is getting alot worse and I’m having trouble with small hemmorhages especially on my feet and toes. They want me to have another spinal tap and nerve study since my last was in 2005 but I am not up to going through that again. I don’t see how it could alter my treatment plan. I’m already on Neurontin 3000mg. Hope you are having a great day and the sun is shining where you are.
AnonymousApril 19, 2007 at 1:23 am
Oddly, I sweat profusely. I add that only because the problem may not be one-sided. Sweating properly is the issue: not enough or too much. Its like an audit where the numbers are close but not right—that doesnt mean necessarilly that your close, it only means your wrong. 😮 Once the problem is fixed, the numbers will change —by how much? Nobody knows until its right.
I had a doctor tell me that manytimes, those nerves that are repairing themselves never hook back up right and the balance is off…I sweat for an hour after a shower. Which kinda defeats the purpose, my wife, tells me. :confused: …but, sweating is a problem and I have no idead what can be done. I actually think it is far less healthy to NOT sweat when your body needs to, than to sweat over putting on socks.
Anyway, thats my 2 cents,
God Bless You,
AnonymousApril 20, 2007 at 12:30 am
man am i messed up!:eek: before i use to sweat just sitting on my bum, during paralysis events i didn’t sweat knowingly, except when i would have fevers, and now i have noticed i sweat when i use my muscles. oh yeah and i sweat like ty said, after my showers-if i had the energy i would turn around and have to wash off again. for the past 2 weeks i’ve been doing aqua therapy in a 90 degree pool, when i do my walking (just 6 short laps) i don’t sweat, but when i’m sitting on the seat and doing my arm exercises(3) i start to sweat really bad. then while i’m sitting in front of the jets(whirlpool type) i’m not sweating again. i have also noticed that when i use my arms/hands for anything else that has muscle use involved, i start to sweat until i stop and it is like the faucet was turned off. along with the increase in muscle use sweating, my fatigue levels have been high, no matter how much rest i get-which has been increased since i started a.t. also. i feel really wishywashy lately.:rolleyes: thinking back to before all this stuff started, my pcp was perplexed by how much i was sweating, would have to change clothes a couple times a day-it was really bad.:(
AnonymousApril 20, 2007 at 6:14 am
Needless to say I sweat if I even talk too much. I can’t stand heat. Not only do I sweat but become very weak and sob. I too can sweat an hour after a shower and even if I just exert myself a little. I am 7 yrs now post GBS but like i say, with the resisuals I feel like I should still say I have GBS because complications never seem to go away. xoxoxoxox Roxie
AnonymousMay 29, 2007 at 11:51 pm
Mine is just the opposite. I never sweat (I also never drink water…I know, thats bad). but since my gbs my legs get really sweaty. I used to love to wear my jammies to bed and be all cozy but now I wouldn’t dream of having jammie bottoms on. I dont know if this is because of all the nerve dammage I have in my legs or not. :confused:
AnonymousMay 30, 2007 at 12:25 am
When in the ICU I sweat something terrible. My bed was always wet. I would always have my legs and toes out from under the blanket. I had a fan blowing on me too and it was November and we had 16 degree temps and snow and I had the hospital window open. Talk about things going goofy! It took another month for that sweating to calm down. I still can’t stand heat! I work out in the rehab pool which is 94 degrees because a during a slow workout in the other pool 84 degrees I get chilled. I am still not able to go in the hot tub and I take a warm shower but then change to a cold shower right before I get out to cool off. I can wear a sweat shirt all Summer and Winter. Looks like a have a very limited wardrobe! When out in the evenings I am the first to put on my hooded sweatshirt! In the Winter I am the last to put on a coat! Yep I blame it on the GBS!
AnonymousMay 30, 2007 at 6:04 am
Ok, I will jump in on this one!!
Oh yes, I can relate to the sweating or feeling “hot” while in ICU…….I begged my wife for a little fan to blow on my face…….she got one, and I insisted on the nurses to position it for me every day. It was SUCH a relief!!
Isn’t this GBS curse something else??
??!! I thought that I was one of the lucky ones that recovered with no after effects…………………..boy, was I ever wrong!!:eek:
I don’t have ANY ENERGY like I used to………..I give out physically just after an hour or two of doing something physical. (Ok, that was poorly worded, but I am tired, 🙂
Now, I have “shingles and eczema”…………..and THAT is really depressing me!! The “dermatologist” is telling me that this is Chronic (which means forever, right???) I really don’t feel important to society anymore…..but, at least I have this family/forum to relate to….Thank all of you soooooo much for being here and understanding.
AnonymousJune 1, 2007 at 8:50 pm
Sweating…omg…my hands and feet sweat like crazy if i don’t keep socks on. I can’t feel temperatures like everyone else. I am always hot and at night i soak the bed completely. i was checked to see if i am going thru menopause but i am not so the doctors state it is gbs related. i hate it because i love to wear sandals or flip flops but i can’t because it allows my hands and feet to sweat so bad. this makes no sense to me but it happens so i guess i have to live with it. if anyone has any suggestions i would love to hear them…
missing my sandals
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