Pre-dx limbo- WWYD?

So, diagnosed with GBS last April, treated with IVIg, a return of symptoms and slow, but spontaneous recovery in June-July, then 2 months of perfect health in August and September. Now fatigue and weakness are back for the past 3 weeks, now so severe that I can’t work.

My neurologist has referred me to Mayo, but now she’s basically washed her hands of me. I asked her what I should do while I’m waiting, and she said to go back to my PCP to rule out anything else and to go to the ER if it gets really bad.

I can’t walk more than a short distance, can’t lift more than about 3 lbs, and don’t feel safe driving. But I know from my experiences in April and June that it’s unlikely I will show the typical markers before I’m really, really severe (my reflexes didn’t diminish until I couldn’t walk or pee, and my csf and EMG were normal at this level of functioning).

I thought about trying to get a second opinion, but all the other neurologists in this city use the hospital that’s already treating me (or not treating me, at this point) as a referral center, were trained there, etc. I’m not sure where it would get me.

Do I have any options at this point, other than taking medical leave and sitting around until I get an appointment at Mayo? I’m actually hoping that it will get really bad really fast so I can go to the ER and actually be treated.