what a resource PE and IVIG nurses are. have you found the same. for instance there are only 8 PE nurses in all of as vegas valley. we all have different doctors, may used different support methods, go to different hospitals but those nurses link us all in this valley. they are able to observe things like “summer is the busy season for gbs and cidp while winter is the busy season for ttp”. if I were some body who wanted to do research on cidp I would definitely use tap into the knowledge that those nurses hold. every exchange I just chated with them the whole time about the prevelance of this disease in the valley and are there any other freaks like me. I found out it is not uncommon to use PE for lupus. they knew others with multiple acute exaserbations and so on.
You must be logged in to reply to this topic.
© Copyright GBS|CIDP Foundation International Forums.
Use of this Web site constitutes acceptance of our Terms of Use and Privacy Policy.
GBS|CIDP Foundation International is a 501(c)3 tax-exempt organization.
Cookie | Duration | Description |
---|---|---|
CONSENT | 16 years 6 months 14 days 2 hours 6 minutes | No description |
cookielawinfo-checkbox-functional | 1 year | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". |
cookielawinfo-checkbox-others | 1 year | No description |