Paresthesia – Numbness/Tingling of legs – Is there anything to reduce it?
November 21, 2010 at 11:34 am
You all remember when your leg fell asleep before GBS got hold of you?The leg felt like wood when you first put it down, you had no idea of where it was (proprioception). Then it starts to wear off and you have just tingling. I have this even now after 22 months and in recovery. What medicine is supposed to help reduce this? I take neurontin, but it does not reduce the numbness. It may reduce pain and shooting stars, but I’m not sure it even does that. Tell me about your experience, please. Does the numbness hang around forever? Or will it resolve when the nerves re- generate? Thanks.
AnonymousNovember 21, 2010 at 1:56 pm
My own experience.
The tingling and numbness has been constant since getting GBS 3 years ago. However over time the tingling has lessened to where it is tolerable.
As the numbness lessened it seemed to be replaced by zaps of shock (I describe as mini lightening strikes), shooting stars and spasms, all of which have also lessened over time and became more tolerable.
My upper body no longer has the numbness and tingling it had when I first got GBS. As the nerves regenerate it should resolve but how long that takes is the [B][U]BIG[/U] [/B]Question
I take lyrica, not sure any meds can reduce the feeling of numbness.
Wishing you continued improvement.
AnonymousNovember 22, 2010 at 1:50 pm
I know how you feel. These are the same questions I have had. Have had GBS/CIDP for a year and a half. I continue to regain strength but sometimes I feel like the tingling will drive me over the edge. Then I remember sitting in my wheelchair in rehab and not being able to lift my arms. I’m now back to driving, walking, traveling etc., so I guess I can put up with the tingling. I still hope it goes away but only time will tell. As anyone had it go away completely?
AnonymousNovember 22, 2010 at 2:50 pm
First, let me state my disclaimer; everyone is different and their experiences may vary depending on other underlying health issues, etc. 🙂
I’m 19 years post GBS and really didn’t experience much tingling in my legs until approx. 3 years ago. I suppose I have numbness as my nerves have not completely regenerated, however, I’m inclined to think I’ve become adjusted to numbness.
That being said, I tried Lyrica for a short while as the numbness and tingling turned into burning pain. I experienced quite a few side effects while on Lyrica and as the tingling/prickling/burning wasn’t a daily occurrence, I just try to deal with it. When it’s really bad, I take Valium; not sure if the Valium works specifically to rid me of the sensation, but it does help me cope. 😉
I hope you find relief soon!!
AnonymousNovember 24, 2010 at 1:33 am
I have been post GBS-onset for 37 months now. My numbness was confined mainly to the lower shin, ankle and foot area. Over time, the numbness disappeared except for the same areas in the left leg and it would only come if I were using the leg in a constant way, like jogging for a period of time. Over the last year, this has gotten better so I can say that in my case, I still have seen changes after two years from onset.
November 24, 2010 at 9:31 am
I was gonna say Jack Daniels but then……
Have you tried massage therapy? Might get the blood flowing and loosen up those muscles, I do not have the discomfort you have but it helps my tingling in my hands which were hit hard and still tingle madly at times
sorry Dude, I hope you are feeling better:)
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