No improvement GBS after a year? HELP!!!!!!

Personally, I always felt there was too much emphasis put on outside services such as p/t and o/t. Sooner or later, you’ll have to take what they teach you and do it at home.

Therefore, do it (p/t and o/t) on your own at home. Find some on line videos, go the library get a book, you get the idea. Live in the US? Find some county services.

find a way to follow the Doctors’ recommendations. It is of utmost importance to get proper treatment.

Still in the US? apply for Social Security Disability. Absolutely destitute? Apply for state aid. Medicaid or whatever they call it in your area.

Stay happy.

After one year- it’s probably not GBS anymore, by definition. Something from Hopkins medicine: “Diagnosis of GBS and CIDP is based on history, clinical examination and supporting laboratory investigations. These include electromyography with nerve conduction studies, blood tests and analysis of spinal fluid. In most instances CIDP requires nerve biopsy for histopathological evaluation.”

go to: http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve/conditions/guillain_barre_and_cidp.html

Engaging in P/T and O/T is really, really important.

As JK said, do it on your own. I had initial physio and have been doing it on my own ever since. It has worked really well but plateaus can last for months. Also, improvement can be sooo slowly incremental that you don’t notice that you’ve progressed. Someone who doesn’t see you regularly may remark about how much better you seem and you hadn’t even noticed.

Sounds like you’re still pretty restricted but try to do as many normal things as normally as you can. That has helped me beyond measure. It’s also good for your morale, once you find things easier to do.

Re $$$…again, same as JK said. I’m in Canada, we have disability and I have a friend in Michigan who also got it stateside. Have you applied yet? You certainly sound eligible.