Night Question

    • Anonymous
      November 8, 2006 at 11:22 am

      Does cidp cause any problems with control at night . I’m almost having accidents and wonder if its the condition or meds. Gabapentin 2700 a day and Morphine slow release at night. Vicodin as needed. Also can not rest at night wondering if theres something you guys or gals take that let you sleep thru the night? Thanks

    • Anonymous
      November 8, 2006 at 2:21 pm

      I don’t know about anyone else, but I can tell you that I have horrible problems at night. I don’t take any regular pain medications but I do take gabapentin, or Neurontin 1600 mg a day. I have asked my neurologist about this several times, and he referred me to an urologist…which i have not gone to yet.
      My control problems started about 2 months before my diagnosis, and continue to this day. They have bed pads at places like Wal-greens or Osco, but these i find to be a bit small, so I use them in conjunction with 2 big trash sacks which i duct taped together and place on my mattress before I make my bed…sounds weird but it works. I am 30 years old by the way, and never thought I would have to face incontinence problems at this stage in life but there ya go.

    • Anonymous
      November 8, 2006 at 6:28 pm

      My daughter was 4 when she was diagnosed & for about a month before she “got sick” she was having accidents. She would catch herself & run to the bathroom but during that time she was changing her clothes 5 times a day.

      I think I’ve read somewhere that CIDP can affect your bladder muscles.

      Since my daughter has started the IVIG she hasn’t had anymore accidents.

    • Anonymous
      November 9, 2006 at 4:05 pm

      That is the one thing I fought hard for when I was inpatient at the Mayo for 3 months back in 2002. Since I was basically a quad, the nurses didn’t want to lift me onto the commode, but I insisted. My roommate, who also had a severe case of CIDP, let them put a foley catheter on her & is totally incontinent to this day. This is a very touch nerve & it is easy to lose. Yes, I think CIDP can cause incontinence.

      My son has been this way since birth (spina bifida) & during the night he has always had one of those plastic enclosures over his entire mattress, even though he wears a diaper. They can be bought at stores like Target or K-Mart. He also has a mattress cover over that, that has a rubber backing on the bottom, so even if he does wet through, it does not wet the mattress. He also uses those quilted rubber-backed pads that can be found in any baby section to put on top of the sheets. It sure saves time in changing sheets all of the time. One learns out of necessity…

    • Anonymous
      November 9, 2006 at 4:56 pm

      I learned last week at the symposuim that several individuals with CIDP have problems with this. I heard enough that I am having my daughter checked out . Abby is 10 and she has always had accidents and pain quite offen. Keep in mind that the CIDP can affect you any where you have nerves.

    • Anonymous
      November 9, 2006 at 6:37 pm

      I am having the same problem, tho now during the day trying to get to the bathroom. When I had problems at night we had a port-a-potty next to the bed I could slide on to and pull myself back up. That way I just had small pads for “leaks” on the way. This is just a small plastic potty with a seat and a lid. Used it on our boat and can be found in catalogs like Cabela’s and other outdoor stores. Time does help these problems. Take care, Regina