Newbie :-) (long)

It was very interesting how I found this website. I was diagnosed with GBS August 2005, what a scary experience. It started out with my hands and fee feeling tingly. I swore up and down that it was just them falling asleep, but it wouldn’t go away. I then thought I had diabetes, could have very well been bc both sides of my family have it. I was scared to tell anyone or go to the doctor. A little over a week later it got so bad that I was scared to drive myself to work. At work I couldn’t concentrate bc I was so worried. My handwriting is not that great to begin with, but it got so much worse. It looked as if I was just learning to write. I finally went to my primary doctor and he recommended I go see a neurologist bc the blood test cleared me of anything he could treat me for. I ask for a referral at the front desk and the girl tells me 3-5 days! I was upset, but thought I could handle it. I waited two days too long, the feeling spread up to my elbows and up to my shins – I was so scared. I called up the doctor’s office to get the referral and she again told me a couple more days. I cried and pleaded to her that I can’t walk or write! I needed this referral now!! So, they had it for me that afternoon. When I went to the neurologist I was in denial. My brother drove me bc I couldn’t drive. I tried to fill out the medical forms, but I couldn’t! It was horrible, I just broke down and cried. My brother filled the rest out of me. When the neuro told me that I needed to be hospitalized I was in shock! Then they told me later on that I would be there for at least a week! I know a lot of stories here are of people in much more serious situations, but this was devistating to me. I was horrified by this. I fully recovered my arms and leg use in a week. They gave me the intravenous for 4 days. I am so thankful that I am here now. My fiancé told me months later that he thought I was going to die, he has never seen someone so sick. For weeks after I was released I had pains in my back, neck and legs. I then started to get double vision in my left eye, which eventually went away after treatment a couple of weeks later. Almost two years later I am still fearful that GBS will come back. I recent was diagnosed with Labrynthitis and just this past Tuesday my primary doctor (a different one from before) diagnosed me with a B12 deficiency which requires a shot every week, then once a month. I do wonder if any of these “weird things” i get are bc I had GBS. Has anyone experienced this b12 deficiency after being diagnosed with GBS? I mean this was almost 2 years ago, but who knows. I havn’t been back to me neuro since Sept. 2005, i guess I just want to block that part of my life out bc it was so scary. I read everyone’s story and my heart goes out to you all! You are all in my prayers!! Lots of love! Melissa xoxo