New, CIDP diagnosed, anticipating IVIG soon

Hello everyone, just checking in. I just joined the GBS/CIDP site.

After 12 years of visiting many specialist ranging from neurologist, neurosurgeons, oncologist, spine specialist, endochronologist, GP’s, and theUniv of Virginia Medical School, I finally received a diagnosis of CIDP two weeks ago from a great doctor at the neuro/endo research department at Eastern Virginia Medical School(EVMS).

Presently I’m waiting on insurance company review for “medical neccessity” of IVIG. I personally suspected a couple of years ago that I would end up going thru IVIG, so I’m mentally prepared for it.

Often I refer to my symptoms as “burning body syndrome”, or as “being dipped into a pot of boiling water” up to the waist.
Luckily I’m still very mobile and active in my hobby and yard work, however, I have noticed a fast progression in affected body areas in the past 12 months. As with others, you would not know that anything is wrong just by looking at me. (except I do get very anci when the burning is bad)

Historically, I was a mountain hiker, scuba diver, (and way back I was a fast 1/4 mile and one-mile track runner in high school) before symtpoms made these experiences very unpleasant.

I’ll post notes on my IVIG experiences/reactions if anyone is interested.

SP