neurologists in Ireland/UK?
AnonymousJune 12, 2008 at 6:51 am
I’m a CIDP sufferer since the age of 13 (now 31) but have had no luck with various treatments (immunoglobulin, immuran, steroids). I havent seen a neurologist for some years now. Can anyone recommend one who may specialise in GBS in Ireland or the UK. I’ve heard that the neurologist I saw in the late 90s in Dublin (Dr.Hardiman) now has a year long waiting list.
AnonymousJune 16, 2008 at 3:15 am
One of our Irish members said:
Unfortunately Ireland has the lowest number of neurologists per head of population in Europe by some distance – thank you Bertie.
Going private does not help – the lists are pretty much as long as the public sector – the issue is that there just aren’t enough neurologists to go around.
Unless you are deteriorating very fast the wait will be long although you may get tests in the interim (NCS studies, MRI etc.)
The important thing is to get on the waiting list asap. Dr Hardiman is very well known and her hospital, Beaumont, is the main neurology centre for Dublin. I would start there (ring secretary, ask if she has a private practice, I suspect she may not, if she does find out if there is a different waiting time for public v private). Then check the waiting times for maybe 2 other neurologists to see if there is much advantage in changing.
Sorry not to be more use… the good news is, if you have VHI or one of the other semi-private insurances, you do get better access to IVIG and other drugs. It sounds like you have got to the point of trying other immunosuppressant therapies at this stage – Deb may have more to offer on the options there.
Best of luck, please give me a call, my number is in the book for Cork, if you want to talk about it.
Best wishes in the battle,
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