Nerve damage repair & myelin restoration

    • August 8, 2011 at 5:56 pm

      GBS causes widespread nerve damage to protective myelin sheaths. Does anyone know if some of this damage is beyond repair? Are some nerve damaged areas gone forever? I was at my doctor today and forgot to ask. Your thoughts please. Thanks.

    • August 9, 2011 at 2:27 pm

      myelin grows at the rate of 1mm per day or so the experts say. long-term disability is more common with patients who are older. 70% are supposed to emerge undamaged, recovery from 6 months to 3 years…the ONLY answer to helping fatigue is exercise, according to the experts

      I dunno how to accelerate this process. samE will supposedly increase the rate of growth but it aint cheap

      sorry Hedley, all I have is cold comfort….

    • Anonymous
      August 9, 2011 at 6:27 pm

      “we” had a discussion on this in June ‘011. Here’s the bottom line of that topic-

      The quote is from another member who helped me to understand two of the conditions involved with nerve and muscle recovery.

      “[I]…I think you may have confused axonal growth with remyelination. The two are different processes. Remyelination is much faster than axonal regeneration. As long as there is no axonal damage, and as long as nothing is continually damaging the myelin, remyelination takes between 2 and 12 weeks. Here is a link to an interesting article on nerve injury: [url][/url]

      I encourage you to read the link.

      For those of you new to the copy and finding links process, please do these things:

      1. Highlight the link only- that’s the part from the h of http to the f of .pdf

      In other words, omit the [url] at both ends from the highlighted part.

      2. Copy and paste that part into your browser address bar.

      3. Download either of the free Adobe Reader or Foxit Reader if you need them to read a .pdf file.

      Happy reading.

    • Anonymous
      August 9, 2011 at 6:45 pm

      I was going to say pretty much what yuehan has said, but without the citations. As I understand it, axons may or may not regenerate and I am not sure why some do and some don’t.

      I am curious, NGG, where you learned that SAM-e aids in nerve regeneration. I am taking it for joint pain post stem cell transplant (a not-uncommon and hopefully time-limited reaction) on the advice of my PCP. It does seem to have helped…it would be great if it also plays a role in nerve regrowth. I researched SAM-e on the internet and could find no information on that particular usage.


    • August 9, 2011 at 9:18 pm

      Thanks folks, but nobody answered the question. (Are some nerves beyond repair or obliterated if you like.) And as far as 1mm per day for healing of nerves, my doctor said that was much too generous, its slower than that. Who knows what is correct, too many contradictions. My fault for asking a medical question. I’ll never do that again. I’m sure there is a witch doctor somewhere who knows more than these doctors about GBS. Nature will tell the tale. There is no med for nerve restoration, otherwise we’d all be someplace other than here on this forum. If I getter better fine, if not, that’s fine too. But I’m sick of this merry go round. The illness remains an enigma. No more posting for me. Good luck to all.