My GBS story

    • February 17, 2016 at 6:55 pm

      I’m 25 and this is my story!Around December 28 I had the flu. A little over a week later I had tingling in my feet every day after another extremity was affected( feet, legs, arms and hands. A couple days later I had leg weakness. So I went to my primary care doctor and she scheduled a nerve study 3 weeks later. I knew something was not right so my mom took to the ER and I had a LP and I had high proteins they said it was either MS or GBS. They took blood and it was confirmed that it wasn’t MS So they diagnosed me with GBS. I was admitted to the hospital for observation. They released me after 5 days. I have to see a neurologist and an internist. I haven’t had any treatment and I haven’t received any muscle relaxer. I was wondering if it’s normal to wait this long to go without treatment? I don’t have any paralysis.

    • GH
      February 21, 2016 at 4:33 pm

      Normally, the diagnosis is made be a neurologist. In your case, diagnosis was in ER and confirmed by the LP. At that point, you should be turned over to a neurologist as soon as possible, who will decide on the treatment plan. Earlier treatment generally leads to better recovery.

      It depends on your condition. Some cases of GBS are mild and the patient can recover with no treatment. Other cases can be severe. What is your condition? Are you getting weaker? If so, the sooner you get a neurologist and treatment the better. If you are stable or recovering, it may not be urgent but you still need a neurologist.

    • February 21, 2016 at 6:17 pm

      I have a neurologist and he’s waiting to do a nerve conduction study to see what treatment I need. I have a milder and stable case compared to what I have heard.