Hyperacusis 6 months after GBS onset?

    • VLB
      September 2, 2016 at 5:49 pm

      Hello All – I wonder if anyone can share experience o hyperacusis with GBS please? I was diagnosed 6 months ago and have ongoing facial issues. I have had mild sensitivity to noise al along but my focus was getting over the paralysis. My facial nerve to recovering very slowly but I now have synkinesis for which I am doing stretches and massage. Thing is suddenly in the last 2 weeks my hearing has steadily got worse. My ears are ringing and my whole head and neck seem to buz with electricity. I can hardly bear any loud sound. My neurologist said (via email) that it’s hyperacusis but he doesn’t know why it’s come on after 6 months. I can hardly bear the discomfort and today spent the whole day I my bedroom. It seems even the feeling and vibration of my own footsteps hurts. Yesterday I took a train and the vibration was uncomfortable. Has anyone experienced similar? Or is it.. dare I say it.. “part of recovery”?
      Thanks for any insight!

    • September 5, 2016 at 4:57 am

      Hi Vicky, I do recall that I had a sensitivity to light and sound during my progression with GBS. I had to have three different signs up reminding all caretakers to use indoor voices or whisper because it was too painful to my ears. At one point I experienced a ringing in the ear along with sensitivity to volume. It gradually subsided end went away on its own maybe 4-5 months after the onset of GBS. Hope this helps. Wishing you all the best!