GBS update 2 years out

    • October 7, 2012 at 3:04 am

      During my recovery I’ve spent a lot of time on this site especially early on and the support and information I have found here is excellent.  Monday Oct 8 marks 2 years since my dx.  I have to say things are much better now and can only emphasize the recovery is SLOW but even so progress is still being made 2 years out.  I was told that after 12 months the recovery is pretty much where you will end up and I can say for sure that is B.S.   To  all of you in ther early stages of this understand it does get better.  Focus on your therapy, do your exercises and after a point go on living your life with as much as you can and look at your progress in monthly or 3 month buckets and you will see the progress.

      Two weeks ago I played tennis with my daughter for the 1st time in 2 years.  Have to say I was pretty slow 🙂  but managed to score a few points.

      Best wishes and prayers to all of you.




    • Anonymous
      October 9, 2012 at 12:39 pm

      I share your experience, Kevin. I am a out 2 and a half years out from my diagnosis and heard the same thing after year one of recovery. I am so much better today and better than I was even 9 months ago. I still have foot weakness and numbness that seems to come and go, but can do anything I need to physically. I try to work out twice weekly and focus on the weak areas and do a lot of stretching. Bottom line for those in recovery, never give up. To go from being paralyzed to functional has been very rewarding. I am blessed.

    • January 13, 2013 at 1:21 pm

      It is generally thought that nerve repair continues up to three years, and on occasion a bit longer. Recovery continues even if you don’t notice it!

      Kudos for making it this far, Kevin. Hope your daughter gave you a handicap. My guess is she was easy on you!


      /great attitude, Pat.

    • Anonymous
      January 13, 2013 at 6:23 pm

      did you three continue to receive ivig after your 1st yr?

    • September 23, 2013 at 4:08 pm

      I was told at least one year for recovery by some medical professionals; up to three years by a specialist. It’s been a year and a half for me and I am still improving. I get longer plateaus than I used to but then I’ll suddenly notice an improvement. Yay!

      Each case is different, so it makes sense that recovery times vary. I imagine that the recovery time prognosis is based on the average?

      My “secret” is to do as many normal things as I normally can. With careful repetition, my body starts remembering how it’s supposed to move, how it used to and it gets easier and easier. That has worked so well for me. Playing tennis as you did before will, I suspect, get easier and better every time you play. That makes me smile, I’m excited for you!