GBS Glaucoma Link?

    • Anonymous
      November 30, 2006 at 10:55 am

      I am trying to learn if any medical research has established that Guillain-Barre Syndrome causes or contributes to Glaucoma (optic nerve damage). I experienced rapid onset GBS with complete peripheral paralysis (but not heart/lungs) on 07/05. Hospitalization and therapy was completed in about three months and I’m now completely ambulatory but still dealing with the dreaded pain, fatigue and other residuals as best I can. I take Topamax (100mgX3).

      I’ve been a type II diabetic for many years so I’ve always been sure to have my eyes tested for Glaucoma. Glaucoma means damage of the optic nerve and is a leading cause of blindness. Diabetics are at risk for glaucoma because high blood glucose levels can damage nerves as well as internal organs. Another cause of Glaucoma is high inter ocular pressure, the pressure of the fluid inside of the eyeball.

      During my recent eye exam, my inter ocular pressure tested in the normal range, as it always has, but a Visual Field Test indicated significant damage to the optic nerve in my left eye. Since I have always kept my blood glucose level under control and my inter ocular pressure is normal, my opthalmologist suspects Normal-tension Glaucoma. So, the eye doc wants to put me through every medical torture test under the sun to learn what caused the damage. But I feel that if there is a medically established link between GBS and Glaucoma, why make me more of a lab rat than I already am? I also don’t like wasting medical resources answering a question that may already have been answered. Can anyone shed some light on this?

      Joe

    • Anonymous
      November 30, 2006 at 11:35 am

      In Google Scholar, I got 51 hits using the following phrase:

      Guillain-Barre Syndrome causes or contributes to Glaucoma (optic nerve damage)

      Much success in your research.

    • Anonymous
      November 30, 2006 at 1:16 pm

      [QUOTE]In Google Scholar, I got 51 hits using the following phrase:

      Guillain-Barre Syndrome causes or contributes to Glaucoma (optic nerve damage)

      Much success in your research.
      __________________
      Jfitzen (GBS — Going Beyond Survival[/QUOTE]

      Thanks, I’m very surprised that none of my prior reading about GBS had mentioned the glaucoma link. Of couse, I had never before added “glaucoma” to my search criteria because I didn’t know I had it. Athough I must do a lot more research, there is clearly a link between GBS and Glaucoma.

      Thanks again,

      Joe

    • Anonymous
      November 30, 2006 at 3:09 pm

      Hi, Joe.

      I’m a CIDPer from across the Pond. The past two years I’ve had all sorts of fun tests because of blurred spots–one at the bottom of my right eye which I can see and another at the top of that eye which was picked up by my optometrist during a visual fields test. My mother is diabetic and has normal glaucoma, so that was the first thing they thought of, but every test has proven negative–my pressure is normal, the optic nerve itself is intact (had it not been, the concern would have been MS or, like you, normal pressure glaucoma). The general concensus is that I have damage to some of the minor nerves of that eye owing to the CIDP.

      Such fun!

      Deb

    • Anonymous
      December 1, 2006 at 12:03 pm

      Since I got older I have been in the habit of getting my eyes examined very regularly. A few months before I come down with GBS my eye doctor found that the entrance to the Optic Nerve had some inflamation. He sent me to my family doctor. After I had the peripheral vision and double vision problem with the onset of the GBS I asked to see a eye specialist. The field of sight was really compromised with the first few tests he did in the hospital. I would wash my face and my eye balls actually hurt when touched. My eyes were swollen and that pressure caused the eyes to buldge and my eye lids would not shut. I could not blink all the muscles were effected. My eyes did not scan together they worked separate from each other like a lizard. I am glad I did not realize how I looked. People would open their eyes very wide when they seen me. I did not make the connection to their reaction till later. I would be looking at something and my vision would go completely dark like smoke was going in front of my eyes. I would wait and it would slowly go away. Later I found that was caused by hemoraging with in the eye.

      Now for the good news. A week after I got home the vision started to come into one image. I could watch tv for a longer period of time and also read a magazine article again. The peripheral vision started to get better month by month and also the field of vision. I was able to drive and my vision actually got better as I recovered than it was for years before the onset of GBS. I no longer have floaters and everything is clearer and the colors are vivid again.

      I am glad I was told by a nurse to ask to see a Neuro-Ophthalmologist. From the very first visit he assured me that the damage from the GBS would heal and my eyesight would improve slowly. I still am going to him for regular exams and each time he sees steady improvement. I am able to see that for myself too! Last visit he said that I have gained back just about all my field of vision.

      It is amazing what this illness had effected in my body. I had never really thought about what all the nerveous system effects.

      Hope this helps! Hang in there and ask to see a Neuro-Ophthalmologist just not an Ophthalmologist. I seen mine in the hospital twice before I come home.

    • Anonymous
      December 1, 2006 at 5:08 pm

      Thanks for bringing this up this subject.

      My husband is an Optometrist and had never heard of this complication of GBS. I’m making copies of the article for him to give to his collegues (sp).

    • Anonymous
      December 29, 2006 at 9:04 am

      Since posting this, I have undergone further, more sensitive testing that has indicated that the glaucoma discovered in my left eye was probably not caused by GBS. That conclusion was made because deformation of the optic nerve is present and, apparently, GBS damage would present in a totally different way. Unfortunately, further testing has also discovered the nerve damage to be more extensive than previously thought so I’ve been placed on eye drops and will be evaluated again in 60 days.

      Joe

      [QUOTE=jparks523]I am trying to learn if any medical research has established that Guillain-Barre Syndrome causes or contributes to Glaucoma (optic nerve damage). I experienced rapid onset GBS with complete peripheral paralysis (but not heart/lungs) on 07/05. Hospitalization and therapy was completed in about three months and I’m now completely ambulatory but still dealing with the dreaded pain, fatigue and other residuals as best I can. I take Topamax (100mgX3).

      I’ve been a type II diabetic for many years so I’ve always been sure to have my eyes tested for Glaucoma. Glaucoma means damage of the optic nerve and is a leading cause of blindness. Diabetics are at risk for glaucoma because high blood glucose levels can damage nerves as well as internal organs. Another cause of Glaucoma is high inter ocular pressure, the pressure of the fluid inside of the eyeball.

      During my recent eye exam, my inter ocular pressure tested in the normal range, as it always has, but a Visual Field Test indicated significant damage to the optic nerve in my left eye. Since I have always kept my blood glucose level under control and my inter ocular pressure is normal, my opthalmologist suspects Normal-tension Glaucoma. So, the eye doc wants to put me through every medical torture test under the sun to learn what caused the damage. But I feel that if there is a medically established link between GBS and Glaucoma, why make me more of a lab rat than I already am? I also don’t like wasting medical resources answering a question that may already have been answered. Can anyone shed some light on this?

      Joe[/QUOTE]