Hi, my son is 16 and was diagnosed over 2 years ago.
I used to be a regular on this site–but life kind of interfered so I’m trying to find the time to get involved again.
Watching my son go through this is so terrible. He feels so hopeless a lot of the time–and I feel helpless all of the time.
I’m the MOM–I’m supposed to be the fixer. I can’t fix it and I’m all out of encouraging things to say. Let’s face it–CIDP sucks.
I’d love to hear from other Mom’s going through this with their kids.
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