Edema and down turn

I continue on my downward sprial. I have been diagnosed with CIDP for 10 years and have been relatively stable treatment Gamunex, Lyrica, and Cymbalta for about 3 years now. Started experiencing a huge downturn in mobility and muscle control in my arms especially.

then a week ago I started having severe edema – water build up in my hands, arms, and legs. Worse than pregnancy! No changes in my treatments or meds at all.

I just started taking Lassix to help with the fluid – with some relief. But my hands are almost unable to do anything. I am much stiffer than ever and my pain seems to have moved deeper in my muscles.

Anyone experienced edema in relation to these drugs or other issues with CIDP. I need to call the ole neuro – but I am getting stubborn in my age with this condition and always dread the next step!

Thanks everyone!