Does this sound like C.I.D.P?

Hi

Please can anyone offer an opinion of my symptoms.
This is not anxiety or hypochondriasis – any anxieties I had were as a result of symptoms not the cause.Very calm now but want to get to bottom of this.

[B]2000 – 2003 –[/B] episode of twitching/fasciculations and muscle cramping all over including throat (only twitching). Diagnosis eventually Benign Fasciculation Syndrome (BFS).

[B]2003 – 2010 – [/B]totally fine, no symptoms, very happy, no problems.

[B]Symptoms started – April 2010[/B]
Saw G.P. – I asked for anti depressants – Seroxat- as very anxious may be ALS
Symptoms had some similarity to previous episode but felt much more intense.

[B]Saw Consultant Neuro -May 2010 –[/B] physical exam. Said I had a condition and he would investigate. Didn’t think ALS.

[B]Brain/spine scan, E.M.G and NCS – June 2010[/B] – awaiting results/follow up with consultant but doc who performed EMG said there no evidence of MND or nerve damage – he wondered if recurrence of BFS – I asked if this would cause my weakness / swallowing problems – he said it wouldn’t.

[B][U]
Present symptoms :[/U][/B]

[B][U]Twitches/Fasciculations [/U][/B]
[B]Jerks[/B] – sudden small sharp movements – foot, hand,arm, leg, whole body.
[B]Fluttering [/B]– rapid up and down movements – can feel and see these – legs, arms, buttocks, groin, neck, eye.
[B]Shallow rippling under the skin[/B] – can sometimes be felt and not seen, sometimes seen and not felt. – sole of foot especially – makes toes move , left calf, left hand (back near thumb),and lots in face, tongue, lip, throat.

Have days where don’t notice much twitching but once there has been twitching usually also cramping/aching and in some areas slight weakness which then remains.

[U][B]Slight tremor in hands and legs[/B[/U]] – especially left side

[B][U]Cramps [/U][/B]- lots of areas – can be very short lived, or can continue for ages leaving the area very achy – both legs and feet, both arms and hands, buttocks (all these more so in left), tongue, throat, jaw, cheeks. Left forearm and left leg been most intense and spasm is visible.

[B][U]Feeling of stiffness in fingers and toes[/U][/B] – this can ease.

[B][U]Swallowing liquids feels odd[/U][/B] – feels gurgly as if it wants to come back.

[U][B]Speech beginning to feel slightly affected [/B][/U]- tripping on tongue especially S and R.

[B][U]Biting tongue and inside cheeks as I speak[/U][/B] – causing ridge inside of cheeks and mouth ulcers

[B][U]Cough shallower [/U][/B]

[B][U]Chewing [/U][/B]slightly affected everything takes slightly longer.

[B][U]Sensory symptoms [/U][/B]- numbness and tingling in left hand and foot initially -rarely now – if I do seems to be after lots of cramp in that area
Bits of tingling – short lasting and not often – eg fingers
Mild burning sensations – various areas – across top of back, limbs – this sensation is increasing – not painful.

[B][U]Joints feel vulnerable [/U][/B]- especially knees, elbows, wrists, ankles. Lots of clicking in joints.

[B][U]Weakness [/U][/B]
Left hand slightly weakened and clumsy – drop things and hurts in hand and arm when pick up objects e.g. mug of tea. Hand sometimes feels tender to touch – below thumb.
Left foot/ankle weakened – balance slightly affected – widen my gait when walking, dressing. Sole of left foot feels slightly tender to walk on.

[B][U]Muscle tiredness.[/U][/B]
Can’t swim /walk as far due to muscle tiredness – normally very active person.

[B][U]Muscles tone affected[/U][/B]
Muscles feel softer, less toned. Left buttock very uncomfortable when sitting.
Possibly some atrophy in left hand and leg.

Not thinking ALS now because of comments from EMG doctor and I don’t think some of my symptoms are typical of the onset of this horrible disease – e.g. my symptoms are quite widespread from early on, affecting limbs and bulbar area and sensory symptoms rare in ALS.

Have wondered about Lyme, Peripheral Neuropathy, MS, or CIPD.

Jean