dodged the relapse bullet today!!!

thank godddddddddddddddd.

past few days iv been a bit down in energy and slight weak. on thursday i rang the neuro clinic and asked for a new appointment closer to now to review and get more meds. they transfered me to bookings, who said they would email neuro and get back to me.. other words “goodbye, we dont care, cid, blah blah”

last night i was a bit iffy in my left hand, so thought gotta keep at it for now and go out with friends and have fun! woke up this morning, and hello dead numb hand and cant move fingers… i wanted to puke and cry. i couldnt do my pants button up for the first time in 7 months!!

I tried squatting down and standing, and got I stuck and needed my friend to lift me up, so my friend took me to the emergecy room and i made it clear that if i wait too long, itll get worse. i need steroids and to be seen soon. well somebody listerened, cos in under 2 hours i had a script and a bottle of methylpreg (500mg a day for 7 days!!!!!!!!!!!) thats alot and im gonna puff up again! and its been 8 hours now, and my typings back and hands are not stiff and can lift groceries and a cup and alll.im soooo happy im not in hospital and having new lines punctured into my chest!!!

So the point of this rant–. we know our bodies and how fast we can go down hill. so make yourself heard (but politely, no need for rudeness!!) and this thing can be kept under control…. now if only i can sleep tonight. ill let everyone know in a few days if the attack has died right down