Do any of you feel your weakness is cyclical?
AnonymousNovember 17, 2011 at 8:38 pm
I’m the mom of a 7 year old with cidp. We have been doing some very aggressive treatments recommended by Dr. James Dyck from the Mayo in Rochester.
Almost exactly a year ago, we started the treatment. He got much better; we continued the treatment and never changed dosages.
Now…..we are seeing him loose some strength and his eye seems to be wandering too. We already know he has a problem with one of the nerves in one eye but it has recently shown weakness again.
Do any of you feel your weakness is cyclical? Was the weakness he experienced last Thanksgiving/Christmas a coincidence?
Again, we have not changed any medication or dosages.
Any information would be helpful.
November 18, 2011 at 10:23 pm
Anxiety and stress have effect on my cidp—-makes all my symptoms worse. Do you think there could be something around this time of year that causes him to be anxious.? Or possibly where he is a young child—excitement from the upcoming holidays? Not sure if that would cause symptoms to increase–but you never know with the nerves.
November 18, 2011 at 10:32 pm
to add to my above note—there was a person in a res care facility i work in who had epilepsy. He averaged 3-5 seizures a year. 3 of these seizures were on christmas, his birthday and the day of the shrine circus—every year like clockwork. these three events were very exciting to him, he talked of them non-stop. I realize epilesy is nothing lke cidp, but just shows how emotions can trigger our bodies responses.
AnonymousNovember 19, 2011 at 6:10 am
I’ve noticed this pattern with me as well but I put it down to the fact that I tend to see more people during this time period, they see more people and bring a variety of germs along with them to which I am not immune. I don’t get sick so much as being exposed to so many illnesses makes my immune system rev up and fight back, which naturally leads to my immune system attacking my nerves as well. I’ve made some progress in limiting my down slide by carrying wet wipes around with me and using them every time I touch something in public, by raising the consciousness level of friends and family to not kiss me if they are sick, and by getting plenty of rest so I have the energy to be well. I usually start getting back to where I was sometime towards the end of January when everybody else’s holiday illnesses have run their course. It did take me awhile to figure out the pattern and cause but it’s been pretty consistent now for 6 years. I have another slight down hill turn in late Spring, early Summer – again because I tend to see more family and friends then what with school getting out and so on. It’s not as noticeable as the Fall/Winter one but it’s still there.
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