More a bit of a silent bird today it seems. Hey, head up, take one day at the time and the pieces will again fall in place. Don’t panic, don’t give up, make sure you sleep (or rest) enough, eat well and just let everything fall apart around you. As soon as you gathered the pieces of yourself, mustered some courage and energy, you tackle the rest of the issues and it will be a piece of cake.

How’s this for a scenario? Divorce, get evicted with 8-year old child, get haunted by heavy guys to whom your ex owes money, serious back-problems (6 weeks flat with injections), end up in hospital with sepsis, partial ilectomy, removal of ‘tumor’, recovery, mother dies, sister divorces (bad divorce), CIDP and simultaneously my partner (4 years relation) gets cancer in his pancreas.

Come on, everything together it’s difficult, one thing at the time is much more easy and don’t forget, panic my cause you to make bad decisions.

I am sure that in about a year you will be chirping about all this. It will not be an easy year but if you manage to keep yourself together you will manage.

Keep your end up birdie!

Love and kisses

As I reminded Lori – you can only eat an elephant one piece at a time 😀 You must take care of yourself first – like putting on your oxygen mask first as they tell you when flying. Then and only then can you be of help to others. Sometimes life just sucks! But like the weather, it can change at a moments notice for better or for worse. Hang in there, Girl! You can make it thru this one 😉 Cyber hugs from one who cares – really!

Chances are that you are not in a relapse but are experiencing what we call “residuals” ~ all the stuff left behind to deal with after the event. I am sorry! For those of us on the forums, this is our life. We never “got over it” even tho we were told we would 😮 Very often, when one feels like it is a relapse, the residuals are flaring up because the body is over-tired. I’m not talking about the kind of tired when you take a nap and wow, life is good again! Every time you over do, it taxes what healthy nerves are left, to do everyone’s job and it puts a stain on the nerves that are trying to heal. Nerve healing takes a longer time than anything else in the body.

Gene is our constant ‘reminderer’ to rest, rest, rest! And yes, your body is on the mend, so take good care of it 🙂

hey numbfingers, I hope residuals is what i have as well. I know exactly what you are going thru.
I went thru gbs 11/01/07 and steadily improved until around 1/1/08, I started to lose feeling in my toes, feet, again with some numbness/cramping..Now it is the 25th or so and I have little feeling up to my knees, and hands going numb..It is both frustrating and depressing, as at first st mary’s of duluth, tried to get me in to see a neuro for the 25th of march…what a joke! finally they are gonna see me 13th of february..which to me is a long wait and see…The hospital is shorthanded on neuro’s they say, but I don’t understand how this should come to be, as it is the biggest business in norhern minnesota..
Sorry for the venting, I was hoping someone says my symptoms are residuals as well, and experienced this much of a decline…deanop

Hey Numbfingers, what did or does the ‘rash’ look like? I realize some individuals have reactions to meds that present in the form of a rash. I am 3 years post GBS, meds are very minimal and developed a rash. My GP sent me to a dermatologist who gave it a name-Granulomar annular (sp?) . It’s descripton was “a benign condition of unknown origin”. I literally laughed when he said this. Kind of sums up GBS, don’t you think. A strong steroid cream took care of it, though it can return I’ve been told. It looked like lyme disease, only it spread. Not very attractive, to say the least. Just wonder when people speak of rashes if it is anything similar…
JayDee

Sorry to hear about all of the trouble you are having. I have numbness, tingling, pins and needles, and pain from elbows to finger tips and from knees to toes. Can not feel my feet most of the time.
I was dx with CIDP in Nov. 2007 and so far no treatment has really helped.
“residuals” i find this interesting, but think it would not apply to me do to the fact i have not been brought under any kind of control.
Will keep you in my prayers and good luck on the 29th.
I know we have to have insurance, but i really do hate the control they have over our medical treatment.

Don, You are pushing yourself too hard too fast, its your bodies way of telling you to slow down and get more rest. No matter what your other half says, if you don’t listen to what your body tells you, you can end up in a relapse again-and I’m sure that is the last thing you need. Stress is a big energy drainer, try to relieve yourself of the stress , as much as you possibly can. Big Hugs! Get ALOT more REST! Relapses aren’t fun, been there done that too many times. Take care.

The rash followed by weakness concerns me. There is something called dermatomyositis that is similar to what you are describing. Here is a link describing that:

(copy & paste into browser) [url]http://www.myositis.org/about_myositis/dermatomyositis.cfm[/url]

I’m familiar with this type of illness because I have a friend with a daughter with this disease. She had a relapse over the summer & the 1st sign of that was the rash, then it was followed by muscle weakness. She’s been getting IVIG, Solumedrol & just finished up her 4th week of Rituxan, which MUCH improvement….but she’s a VERY serious case & has tried every other medicine known to mankind.

Hope that helps some,
Kelly