curious about new sensation…

    • Anonymous
      October 14, 2008 at 5:11 pm

      Wondering if anyone has experienced this sensation:

      from about 3-4 inches from my elbow joint, on the underside of both arms, I get this sensation that the muscles want to cramp all the way into my hand and fingers. It feels like my arms and hands are saying…one of these days your gonna get a doozy cramp that is going to curl your fingers in and pull your arms into your body and boy is it gonna hurt. LOL

      Just wondering if anyone else has experienced this and if you did…did it ever turn into a doozy muscle spasm?


    • Anonymous
      October 14, 2008 at 5:22 pm

      On yeah! And it is like a charlie horse in your arm. I get cramps/spasms all the time. My hands are getting really bad. I just work at stretching the muscles out as best I can. Heat helps, especially moist heat. Hot water bottle/shower)

    • Anonymous
      October 14, 2008 at 5:33 pm

      Thanks Jan.

      I get bad muscle spasms too. Usually in my legs and feet but they have started in my back and neck too. Now my arms/hands are playing games with me. LOL

      When my legs/back is really bad I will soak in a hot tub but that leaves me exhausted and seems to bring on the numbness in my foot more so. I try to avoid that unless I really have to.

      My GP gave me an rx for flexeril on Friday..haven’t tried it yet but I will.

      Thanks again.


    • Anonymous
      October 17, 2008 at 12:55 am


      My cramps were mostly in the legs, but CIDP can be in the arms more than the legs sometimes. I got them when I did a lot of activity, maybe it was a build up of lactic acid. I tried to stay stretched and as flexible as possible. sometimes bananas or milk can help (potassium) or quinine (is it is club soda? I forget)

      I went through a couple two or three years of bad cramps, but the past year or so hasn’t been that bad.

      This too shall pass.

    • Anonymous
      October 17, 2008 at 7:50 am

      Thanks Dick,

      I eat bananas every day and take supplements. I woke up to a muscle spasm on the front side of my neck into my shoulder this morning. yikes! 41 days until my appointment.

    • Anonymous
      October 17, 2008 at 2:51 pm

      lynxgal, I also forgot to mention that I get that same “almost cramp” on the inside of my leg, especially the right side, which happens to me my weakest side. It starts just above the knee on the inside, and fells just like a cramp is about to start but it never really materializes.

      I get cramps almost anywhere. Neck, stomach, face, arms, legs, etc. Very annoying and often painful!

    • Anonymous
      October 17, 2008 at 5:30 pm

      Kelly, I don’t want to be a downer but, I just went through something that sounds like that. I never noticed the sensations before, and now I’m in a relapse again. Mine didn’t go into the doozy spasm but I am going down hill pretty hard this week. Of course I can’t blame it totally on the feeling since I have been over doing it abit this week with my hubby out of town and trying to take care of my kids by myself along with everything else. Actually I never gave the feelings more thought then just the Ohhh thats something new thought when it continued to pop up at the most in opportune times. 2 nights ago it hit me while shopping-more annoying than anything. I’m starting my pred dose today. If my feeling turns into the ugly spasm monster, I’ll let ya know. I hope yours calm down for you without any further problems. Take care.

    • Anonymous
      October 17, 2008 at 9:57 pm

      Jan…me too…spasms everywhere from my face to my toes and almost everywhere in between. Can I ask if you have a final dx and what it is?

      Angel..thanks. Hope the meds make you feel better soon. Don’t forget to take sometime for yourself and get some rest.

    • Anonymous
      October 17, 2008 at 11:45 pm

      I was to a neurologist last November and he tells me it is just residuals from GBS. I had GBS 25 years ago and was relatively well until about 4 years ago. Looking back, things I struggled with were probably residuals but were not severe enough to pay attention to. There are a few of us here who are going through this after many years of being well.

      I have spasms every where too! I can be good for days and then they hit and I don’t know what to do with myself. I have tingling, electric shock sensations, stabbing pains in my feet, little shots/pricks that feel like I am getting a needle ( worst are in my toes and fingers), creepy crawly feelings, tender spots that are hyper sensitive,l and the list goes on. Any of this sound familiar?

      What is your diagnosis? I have probabl:o y read it somewhere but can’t remember!

    • Anonymous
      October 18, 2008 at 5:00 am

      All of it sounds familiar LOL.. add in feeling like I am being branded every once and awhile, vertigo, numbness in my foot, balance problems, drop foot starting, electric shock sensation anywhere in my body and this really weird sensation of my brain shaking in my head. Oh and everyonce in awhile I have these boughts of insomia…LOL like tonight.

      I have been told that they have confirmed there is a sensory motor polyneuropathy going on and they will be looking for a PN that mimic MS. While researching my sx I came across CIDP and it seems to fit. If it is CIDP I have no idea how I would have gotten it.

      I was not sick before this all started in March 2007. In fact I have not been sick…with a cold, virus, flu whatever since September 2000 that was when I had your run of the mill stomach flu that we all got here.

      Hope they figure it out soon. Seeing the PN specialist in November.

    • Anonymous
      October 18, 2008 at 5:09 pm

      Wow! I have some of those things too! He did (the neuro) told me I have a PN and he is thinking it is from the GBS but the more I read here the more I wonder…

    • Anonymous
      October 18, 2008 at 5:37 pm

      Hi all, I get cramps in my arms that go into my hands where the cramp pulls a finger or thumb in toward my palm. Hurts like heck, I breathe deeply and try to relax the arm and hand with the cramp until it eases up. I’ve tried to pull the affected finger or thumb up but that just hurts more. It doesn’t last more than a minute or so but boy it feels like forever while happening:) Sometimes happens in my feet to toes, usually when I stretch in the morning…like they are saying, nope we are not ready, lol. Feet feel like I’m walking on swollen pads of pins and needles. They aren’t swollen bc my shoes fit. Aaaaaaa I could go on and on 😮 Hope everyone is having the best day they can!

    • Anonymous
      October 18, 2008 at 8:11 pm

      I get those cramps just about anywhere but the worse is my toes and foot spazzing out. Now that hurts. Foot will curl inwards and one of my toes will stick up in the air and the pain is horrible! I take Flexeril at bedtime now for mine which helps some. Thank god they have flexeril!

    • Anonymous
      October 18, 2008 at 11:26 pm

      [QUOTE=LindaH]I get those cramps just about anywhere but the worse is my toes and foot spazzing out. Now that hurts. Foot will curl inwards and one of my toes will stick up in the air and the pain is horrible! I take Flexeril at bedtime now for mine which helps some. Thank god they have flexeril![/QUOTE]

      So do, I get the exact same thing in my feet, but nothing seems to help.