Could I be in remission?
AnonymousJuly 28, 2007 at 2:31 pm
Hello all my friends, it’s been awhile since I have typed anything and for that I apologize. I just got my new NaturallySpeaking Dragon nine, and it is wonderful. I just talked at a normal rate in a normal voice and it types almost everything I say correctly.
I went to the doctors the day before yesterday. He checked my strength and get all the little push and pull tests. He says my strength level is fairly good. And that if I do therapy there’s a possibility I could be walking within a year! Now just to find a place to get that therapy. I’m leaving on a trip on the fifth of August to a health spa for two weeks. My doctor says the best thing I could do would be to get in the pool and just walk around. So that’s the plan. For those of you who have gone into remission after being a wheelchair or with a walker how long did it take before you are up and walking?:)
AnonymousJuly 28, 2007 at 11:46 pm
Hi Vikki, Nice to see you again. For me the first time I was up a few days after I was in the hospital, my pt/ots were wonderful. I can’t say I had alot of problems I just do it and am lucky I don’t fall. I usually take up to a week after my paralysis events to get up, I can’t feel where my feet are or anything but I know they are there somewhere and I just do it. I found that aqua therapy helped me quite abit also. 2 weeks sounds very nice, need a chaparone?:) I’m crossing my fingers for ya! Big Hugs!!!
AnonymousJuly 29, 2007 at 2:30 am
Hi its Paul Here I was wondering the same as I have been in this damm chair for nearly 2.5 years. Sick of it is a understatement. I keep doing Physio and Now I have pressure sores in three areas on my foot. So that has put me back again. I also wasted 6 Months with deep vein in both legs and lungs. All I want is a bloody fair go. Sorry about my sooking
AnonymousJuly 29, 2007 at 2:02 pm
Dell is 3 and has never walked. He walks with the aid of a walker, the kind an older person has but it’s reversed.
If his neck had more strength, I believe he could walk. After his SED rate went from 80 something to normal, 10, his arms started to get tone in them. Before, they were like jello.
This has only been since the last couple of months so we know the nerves are mending, we just don’t know how long they will continue to mend before they stop.
Dell is very scared about walking. He will only take a few steps to me. If the furniture is all within arms reach, he’ll walk around until he runs out of furniture.
Good luck. Keep us posted.
AnonymousOctober 18, 2007 at 1:51 pm
I am back from that spa and from visiting my family for a month or so. I had so much fun in Minnesota, the people at the spa were wonderful. From the very beginning they made it quite clear that they were willing to do whatever it took to give me a good time. My room was out in the barn, and what fun, it was the German room with good heavy furniture so when I banged into it he didn’t move much if at all. A low the room was quite large and the furniture was actually out of my way. Every morning they would send somebody down to get me for breakfast. Just walk beside me and make sure my scooter didn’t tip. After a few days they realized I could do just fine and my babysitter stopped coming to get me.
I went into the pool every day at least once most times two or three times. I even picked the class couple of times where we used floating weights to do exercises with. I really enjoyed the hot tub which I went into after swimming and sometimes before. But I think my favorite things to do were the spa treatments. The facials were so very relaxing and a full body massages were like heaven. I had one massage that really focused on the leggs and for the next few days I didn’t even have one cramp.
At the spa they taught me the correct way to eat and how to gauge things by seeing the difference between half a cup and 1 cup. Though for me they should’ve gone to more I Cup against 3 cups. And then done the half cup thing. I really enjoyed all the food and have tried to stay doing the things they showed me how to do. I have lost 17 pounds since being at the spa. Losing the weight has probably been the best thing for me because that is 17 pounds I’m not driving around with me trying to learn to walk. Now if I could stop falling, and spraining and breaking my foot I might actually gain some more ground. I feel really good but I still get tired very easily. I think my foot is finally getting better and I’ll soon be ready to start a pool therapy again. I see my neurologist on the 26th and he might okay me to start some kind of therapy. Well as I’m not really supposed to be writing a book I think I’ll say adios for now and hope this finds everyone doing better. Love you all, Vicki
AnonymousOctober 25, 2007 at 2:24 pm
I wasn’t in a wheelchair, but I was using a cane. I probably should have had a walker, but I live in NYC, and you can’t really get around with a walker! But after I got out of the hospital, it took maybe 3 months before I was walking without the cane, and a little over a year before I was back to where I was–walking without pain and without falling, and running two miles a day. I had physical therapy for 2 months, twice a week, and that really really helped.
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