Has anyone found a successful treatment for cidp with predomiantly aoxnal nerve damage?
My son Cole is 10 years old, dx with cidp 6 years ago. We are told the nerve damage is predominantly axonal and so repair, if we ever get him into remission, will be very slow. He is currently getting ivig weekly, (2/kg each week) with solumedrol. He is slowly detiorating. The rate increases when we decrease the dosages.
April 20, 2007 at 4:47 am
Betty, there is a condition known as Giant Cell Axonal Neuropathy which gives a similar picture to CIDP and starts not long after the third birthday. I am sure your neurologist has considered this, but I just query it. By defnition loss of myelin must occur in CIDP so treatment is aimed at inhibiting further myelin damage ie; IVIG, plasma exchange, immunosuppressant drugs etc. Unfortunately only time is the treatment of axonal damage. DocDavid