CIDP reference pages

    • Flossie
      May 20, 2006 at 1:48 pm

      Here are my favorite reference pages relating to CIDP. You might want to actually print out some of the information since these pages come and go.

      [url]http://www.emedicine.com/neuro/topic467.htm[/url]
      The best info on CIDP

      [url]http://www.neuro.wustl.edu/neuromuscular/antibody/pnimdem.html#cidprx[/url]
      This is the best info on CIDP treatments

      [url]http://www.aafp.org/afp/980215ap/poncelet.html[/url]
      How doctors decide which neuropathy you have

      [url]http://endeavor.med.nyu.edu/neurosurgery/index.html[/url]
      This is a text book telling how to do a neurological exam

      [url]http://psych.athabascau.ca/html/Psych289/Biotutorials/1/part1.html[/url]
      This is a text book page with diagrams of the neuron

      [url]http://millercenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/cidp.shtml[/url]
      This is a nice summary of symptoms and tests.

      [url]http://brain.hastypastry.net/forums/forumdisplay.php?f=143[/url]
      This is another CIDP dicussion forum

      Please add your pages. We need to rebuild lost information for new CIDP patients.
      Flossie

    • Flossie
      May 20, 2006 at 2:04 pm

      I have been diagnosed with CIDP since 2000. I have only been treated with prednisone (and neurontin for pain).

      When you are first diagnosed one is naturally and correctly disturbed by the possible side effects of long term steroid treatment. Try to remember that not every one will get every side effect. Prednisone is cheap and works for many CIDP patients.

      Here are some reference pages to help you weigh the pros and cons with your neurologist.

      [url]http://www.gihealth.com/html/education/drugs/prednisone.html[/url]
      My favorite page of prednisone information

      [url]http://www.classkids.org/library/pred.htm[/url]
      A very good explanation of side effects

      [url]http://www.aafp.org/afp/980800ap/zoorob.html[/url]
      How doctors decide if prednisone is safe

      [url]http://www.medsafe.govt.nz/Profs/Datasheet/a/Apoprednisonetab.htm[/url]
      A technical page from NZ

      [url]http://www.emedicine.com/med/topic3558.htm[/url]
      An excellent discussion of immunosuppressants in general

      [url]http://www.neuro.wustl.edu/neuromuscular/mtime/immunerx.html[/url]
      More on immunosuppressants in general

      [url]http://www.rxlist.com/[/url]
      A nice resource for drugs and interactions

    • Anonymous
      May 20, 2006 at 4:45 pm

      Here are some more links that I had saved:

      [URL=”http://www.cidpusa.org/”]http://www.cidpusa.org/[/URL]
      CIDP:USA Foundation

      [URL=”http://www.ninds.nih.gov/disorders/cidp/cidp.htm”]http://www.ninds.nih.gov/disorders/cidp/cidp.htm[/URL]
      [COLOR=black]National Institute of Neurological Disorders and Stroke-CIDP Information[/COLOR]

      [URL=”http://www.drugs.com/enc/chronic_inflammatory_polyneuropathy.html”]http://www.drugs.com/enc/chronic_inflammatory_polyneuropathy.html[/URL]
      Drugs.com description and explanation of CIDP

      [URL=”http://www.dcmsonline.org/jax-medicine/2000journals/august2000/neuropathies.htm”]http://www.dcmsonline.org/jax-medicine/2000journals/august2000/neuropathies.htm[/URL]
      Paper on Current Concepts In The Diagnosis And Treatment Of Peripheral Neuropathies

      [URL=”http://www.jsmarcussen.com/gbs/print/trial1.htm”]http://www.jsmarcussen.com/gbs/print/trial1.htm[/URL]
      Paper by Dr. Parry on Residual Fatigue

    • Anonymous
      May 21, 2006 at 1:05 pm

      Thank you for listing these sites. I’ve been acquainted with some of them but learned new ons.
      Peace,
      Pat

    • Anonymous
      May 21, 2006 at 3:00 pm

      Folks, How did you miss out on the classic CIDP info at [URL=”http://www.gbs.org.uk/info/cidp.htm”]http://www.gbs.org.uk/info/cidp.htm[/URL]?;)