- This topic has 4 replies, 4 voices, and was last updated 14 years, 12 months ago by Anonymous.
May 20, 2006 at 1:48 pm #2777FlossieParticipant
Here are my favorite reference pages relating to CIDP. You might want to actually print out some of the information since these pages come and go.
The best info on CIDP
This is the best info on CIDP treatments
How doctors decide which neuropathy you have
This is a text book telling how to do a neurological exam
This is a text book page with diagrams of the neuron
This is a nice summary of symptoms and tests.
This is another CIDP dicussion forum
Please add your pages. We need to rebuild lost information for new CIDP patients.
May 20, 2006 at 2:04 pm #11246FlossieParticipant
I have been diagnosed with CIDP since 2000. I have only been treated with prednisone (and neurontin for pain).
When you are first diagnosed one is naturally and correctly disturbed by the possible side effects of long term steroid treatment. Try to remember that not every one will get every side effect. Prednisone is cheap and works for many CIDP patients.
Here are some reference pages to help you weigh the pros and cons with your neurologist.
My favorite page of prednisone information
A very good explanation of side effects
How doctors decide if prednisone is safe
A technical page from NZ
An excellent discussion of immunosuppressants in general
More on immunosuppressants in general
A nice resource for drugs and interactions
May 20, 2006 at 4:45 pm #11255AnonymousInactive
Here are some more links that I had saved:
[COLOR=black]National Institute of Neurological Disorders and Stroke-CIDP Information[/COLOR]
Drugs.com description and explanation of CIDP
Paper on Current Concepts In The Diagnosis And Treatment Of Peripheral Neuropathies
Paper by Dr. Parry on Residual Fatigue
May 21, 2006 at 1:05 pm #11337AnonymousInactive
Thank you for listing these sites. I’ve been acquainted with some of them but learned new ons.
May 21, 2006 at 3:00 pm #11346AnonymousInactive
Folks, How did you miss out on the classic CIDP info at [URL=”http://www.gbs.org.uk/info/cidp.htm”]http://www.gbs.org.uk/info/cidp.htm[/URL]?;)
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