Now, at least as of today, Feb 23rd, there is a posting pinned at the top of the CIDP page containing a link which takes you to a survey web site.
it (the survey) worked for me. And, I see 75 people have read it. It’s locked, so no way I can see to know if people are taking the survey or not.
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Attention: CIDP Patients
Once again we need your help! As many of you know, CIDP patients face great financial difficulties due to exorbitant health insurance co-pays for their IVIG treatments. Many patients find themselves without insurance making access to needed treatment extremely difficult.
The GBS/CIDP Foundation is working with Patient Services Inc. to develop a program that will help patients with treatment costs. In order for us to be successful, we need to gather current health insurance data. If you have access to a computer please login at [COLOR=navy][FONT=’Arial’,’sans-serif’][URL=”https://www.surveymonkey.com/s/YV9XV3X”]https://www.surveymonkey.com/s/YV9XV3X[/URL] and [/font][/COLOR]take 10 minutes to complete the CIDP health insurance survey.
Thank you
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