Hey All,
Heather is doing great…We passed neuro at a 95% and will try for maintenance. however we have a new sypmtom and I would like to know if anyone else has experienced this. Please email me Directly at
Lia6218@hotmail.com. I have not yet figured out how this forum can auto email and have tried unsuccessfully to set that feature so please bare with me. I attached a pic as well.
Heather broke the capillaries in her ankle, both sides.. looks like a giant hickey. I am taking her for blood work tomorrow for some platelet counts and general cbc. Neuro had no idea what could have caused this and the treatment for low cappilary count is Gamma, (ugh!!) we will see what the Pediatrician and the blood work comes back with, but if you have any information for me I sure woudl appreciate it.
Mom2heather
(Lianne)
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