Autonomic Nervous System

I don’t know about M-F, but at my worst I had GI problems which cleared up as I began to recover.

I have GBS/CIDP/MFS. MFS seemed to mostly affect areas of my face: couldn’t close my right eye, couldn’t smile, slurred speech, swallowing problems, numbness on my face. Most of these problems have been resolved, but not 100% after 5 years.

I also had muscle weakness that affected my breathing and it took a good 6 months before most of that went away (still left with minor breathing weakness). I don’t know if this was MFS or GBS/CIDP related.

A couple months after the onset, I was diagnosed with Atrial fibrillation (AF) and had to be put on blood thinners (Warfarin/Coumadin). My Neuro thinks the MFS may have been involved with AF. I was on this treatment for about 18 months before the doctors felt it safe to stop the treatment and see if the AF was gone. I have been AF free for almost three years now.

In my case the MFS damage seems to have slowly been repaired, some things faster than others, but none of the affected functions are back to pre-MFS levels.

At some level, most people identify that the nervous system takes in all the information in the world around us, and sends messages to our muscles that let us to make our method during that world. If this first springs to mind when thinking of the nervous system, it’s since those are the parts about which we are mainly deliberately awake.

I had my bout of GBS 20 years ago. I was left with a lot of weakness, probably the same of all of you ~! My question is just lately I get the shakes in my hands to the point I have trouble putting the food on my fork. I get hot frequently and then it goes away. Any one else in my boat ?

I recently read that in 85% of cases the cranial nerves are involved to some extent. Do some research and lots of digging into the 10th cranial nerve and the effects it has on the body. I still have no gag reflex, still have problems swallowing and sometimes clearing my throat, digestive issues, heart palpitations, up and down blood pressure, body temp that has dropped as low as 93.9 in a warm house while dressed comfortably, other times I will start sweating even if the weather is cool, get hiccups sometimes just by changing position in bed. Anyhow, read up on the autonomic system problems with GBS and the different cranial nerves.

I got hit in 06. Have recently been Dx’ed with seronegative RA, non-allergic rhinitis, Dx’ed with fibro and chronic fatigue 2 years after onset. I was told the GBS did a job on my system and my system is still reacting inappropriately. Still get muscle weakness without warning, numb patches, tingling, electric type shocks all over, blurred vision that comes and goes, trembling in my hands (horrible hand writing now), muscle cramps, twitching…long list sorry.

Dear member,you sound like me. Do they ever say oh it couldn’t be the GBS, it was to long ago ? (18 years) I get the sweats so badly out of the blue. When I was in my coma , I had a fever of 107, three times. I feel like my hypothalamus was ruined. Doctors don’t know how to test it.