AnonymousJanuary 22, 2007 at 3:47 pm
The BBC Web site today had an interesting article on the unravelling of the genetic structure of the immune system. It can be found at http://news.bbc.co.uk/1/hi/health/6279521.stm
Best wishes in the battle,
AnonymousJanuary 22, 2007 at 7:11 pm
Deb, thanks for sharing the article regarding autoimmune research. I’ve been reading everything I can find. I think the more we can educate ourselves and understand what is going on and what is available, the better we’ll feel. Even if it is only mentally.
My sister has MS, my mother has Parkinsons and I was diagnosed with GBS 2 years ago. Makes me wonder what weak genes we carry that are affecting our autoimmune system.
Thanks again for sharing, that’s what this forum is all about.
AnonymousJanuary 29, 2007 at 11:49 am
BBC have posted another interesting article on autoimmune disorders at [url]http://news.bbc.co.uk/1/hi/health/6271781.stm[/url]. I’m very glad to see all this research being done. It’s good that research is going into treating the symptoms of these disorders, but it would be much better to stop them at their source!
AnonymousJanuary 29, 2007 at 3:03 pm
There is good news in the research area – here, Deb, is a journal article of a drug candidate which “ameliorates” EAN (experimental model of MS/autoimmune illness). Generally speaking, it involves interrupting the homocysteine metabolism cycle. I vaguely remember the company has applied for a patent already, but didn’t save the link.
In addition, I discovered a product used to fight cancer in Europe/Asia that claims to improve the balance of Th1/Th2 cytokines in some autoimmune illnesses. We have been up against a wall for some time now, not seeing any improvement in my daughter’s rate of relapses (every 2 weeks). It was approved in May 05 by the FDA as a nutritional supplement, and an American supplier cannot make any health claims, but we decided to give it a try after an extensive look at its mode of action and side effects (very safe).
It is probably too early to tell, but my daughter is doing very well these past few weeks, and we feel this enzyme may be contributing. **crossing all fingers and toes*** I have been a bit reluctant to throw out this reference, because I truely didn’t know if there would a detrimental effect ( as far as I can tell, no one with cidp has ever taken this stuff). It has been almost 2 months now, and as I said, it appears to be having a positive effect. Here are some links if anyone wants to discuss it with their doc.
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