Anyone experience Vocal Cord Paralysis from CIDP?

    • Anonymous
      February 27, 2011 at 12:23 pm

      The title pretty much says it all. My left vocal cord is paralyzed. My Ear Nose and Throat specialist doesn’t know if it’s from CIDP or not. Anyone else experience this….? If so how did you handle it? Any treatments for it?

    • Anonymous
      February 27, 2011 at 9:28 pm

      Yes, I experienced speech loss from the GBS. I lost the ability to control the muscles in my throat and mouth, so eating was difficult, talking was very awkward, and I could no longer sing for about 2 years.
      But the muscles regained their strength very slowly, and I can now do much of what I could do before GBS. It was a wonderful experience to be able to whistle again, and then to be able to sing once more, though weakly. I still get periods of relapse, when things deteriorate again, but all in all healing has been taking place.
      I received no medical treatment.

      One thing to watch for is allergic reactions to chemicals, toxins, etc.
      I already have asthma, allergies and sensitivities, and I discovered I was allergic to some of the new toothpastes on the market. They made my mouth, tongue and throat go completely numb for hours and I’d lose all sense of taste for weeks. As well, newer food additives in foods that numb the taste buds also made me extremely nauseous, so I stopped using those products. I peeled all fruits, because the pesticide/herbicide/fungicide residues worserned my GBS symptoms. I stayed indoors when lawns and fields were being sprayed or treated with pesticides and herbicides.
      Protecting myself allowed my fragile and damaged body to slowly heal itself.

      You have to check these things out for yourself, but if something worsens your symptoms, take steps to eliminate it from your consumption or contact.
      God bless you.

    • Anonymous
      February 27, 2011 at 9:48 pm

      When I first was introduced to IVIG at a doctors’ offices. This poor person had been thru mis-diagnoses 1-15 before my neuros ‘got the right one’!
      The tale was frightening, and because of this? I give CIDP the utmost respect! She could not swallow at all, nor eat…had been in and out the ER & Intensive care several times for over a year before getting a diagnosis! Not to mention the weight loss and debilitation from that all and time off from work! Forget family life? The IVIG helped her get back to normal and to work and to LIFE.
      The nervous system is simple yet complicated…what makes it messier is that the immune system attacks us each one is so many different ways. Just know you aren’t alone. It’s not in your head and you’re not crazy!
      Best things to do? Is to learn about how CIDP can and does affect many, all the different ways and when something ‘new’ pops up? You know which doc to call!
      Common sense, learning and reason will help us all get thru this! Hugs!