Advice please help needed regarding a form

Thanks Jim. The form has all these yes and no answers. Also a limitation questions; bending/twisting, above/below shoulder activity, repetitive movement with a chance to explain more.

Speed is also a factor and multitasking. At times we can pack up to 7500 units per day. Maybe if the pace was a bit slower I would probably do any modified work.

I also recognized that beside CIDP making me tired having arthritis and Tendinitis will make me tired. I read while my hands are inflamed and they are in the processor of healing it takes energy from my body. I also know when my ADHD medication wears off later in the day I am tired also. So it’s a combination of things.

Sue

Thanks Aimee. 🙂
Will keep that in mind. I go see my family DR Next Friday the 11th to get him to fill out the form. Maybe there is a way I could do a job at a desk like I did yesterday or maybe help in the Health and Safety area with the work involved there. As I am part of the committee and we are suppose to help with projects but we really haven’t been given the chance yet.
I will just explain to my DR exactly what I am telling you all and together we will figure something out.
It’s just I feel worse in the last few months since my Raynaud’s started acting up and especially since I got the tendinitis. Then you add the residual of my CIDP and the wearing off of my ADHD medication late in the day and all I want to do is sleep.
Also I have been only taking my Lyrica lately at bedtime; rarely in the day if my nerve pain isn’t bothering me much. I thought that would help make me less tired.
I am so frustrated and discourage that I feel worse then I did 6 months ago but my nerve test is the same as it was last year; no change.

Thanks

Sue

Thanks Dick 🙂 It hard when lots of people I work with don’t understand even if I did show the article from DR Perry. Because they say “well you got this paper from the internet how do you that is what you have?” I just heard it yesterday.

Thanks It’s hard most days lately. I guess just got to think that if the production line run fast every day at it’s worse can I do the job? If I can’t then that is what I will have to get the DR to put on the form.

Will keep you posted on how things go on Tuesday when i go back to work.

Sue

Hi Norb The form is for my Employer/Job I was doing modified duties but some of the modified work I am having a hard time with because of the speed of the production line and because of my Raynaud’s/Tendinitis/CIDP and since it’s not work related they asked that I fill this out so they can accommodate me to suitable employment that is within my specified restrictions.

Right now my fingers are swollen and the joint in my hands and fingers hurt if do a lot of manual dexterity work especially when it’s fast. Also I have a hard time to multi task especially when it’s fast and you have to be able to be quick with your fingers.
Also I get so tired so fast The other day I did a job for 2 hours I felt burnt out tired like a truck ran over me after my break I want and did the job for another 15 minutes and I just couldn’t take it no more.
Lately all I want to do is sleep I am just so tired. Don’t take me much to get tired compared to 6 months ago.

It’s a standard form. On an other paper it tells the DR why they want the form filled out and it “says that at the same to assist them into returning to their pre-injury position.”

Well I don’t know how long before I get my tendinitis under control and my Raynaud’s. Also having CIDP doesn’t help much especially the part of being tired all the time and absolutely no energy.

I thought about getting my DR to write a referral for physiotherapy because my work insurance pays 80% to a maximum of $250.00. But My Employer wants the paper filled out as soon as possible.

PS: I hope you are doing well in your recovery

Sue

I am sorry you are going through a rough time Norb. Sometimes you need the pain meds to make sure you get a good night sleep. it’s the only way your body will heal. Is there nothing they can do for your hands? I know lots of people are worse then I am. So I realize I am lucky. It’s just how to get a handle on things when nobody I work with understand. They assume you look healthy what is the problem?

Hi Marie I was thinking about the same thing you were. Tell my DR that on my worse days I can’t work the production line. If I didn’t have to switch jobs with the other modified people and stick to one job I can handle it might be a solution also. But my work place would not allow that right now. My boss said they would if they were busier and had the 3rd production line running.

Because before I was doing the jobs I could do as tolerated. So when I had a hard time they would move me. But now “as tolerated” is not acceptable. Either you can or you can’t and since I never know what I will feel like one day to the next and not sure how hard the job might be one day to the next do to various reason. I might just ask him to take me off the production line for now. Unless they need me and they can accommodate me.

One more question. What is the difference between an Occupational Therapist and a physiotherapy? Is an occupational Therapist does physiotherapy on a person?

Thanks Everyone

Sue

I really hope the IVIG helps you.

Thanks for the explaining the difference between the occupational Therapist and Physiotherapy. Now I know I would need a physiotherapy. Since I am off on Monday I will look into that and finding ways that I can get some of the physiotherapy covered since my health plan at work only covers to a max. of $250.00. If I knew it was just my CIDP alone I might have had help from MDA of Canada. But Monday I will do some phone calls. Since I see my DR on Friday he would have to write a prescription for the physical therapy.

I told my Dad about the pedal exerciser and he got it. My Mom says he uses it every day since he can’t walk and is a wheelchair it keeps his legs moving. He could use it for his hands but since the stroke he cannot keep his hand on it as his right hand can’t hold anything.

Take Care of yourself and rest

Sue

Hi Norb. My work health plan is good but not in all areas. Usually the first visit is around $60.00 and the following visit is $35-$50 depending where you go. The one of $35. is subsidies by our provincial health care. Also my insurance plan pays 80% of that to the maximum amount. I know our provincial government pays for people that are in the hospital. Also people who can’t work because a disability may get free service also about 50 visit maximum.

Tomorrow I will look into what I resources there is for me. If I knew it was just CIDP only maybe MDA would help me but I will call or visit a few places tomorrow a few blocks from my house that would know more. Provincial MP office and the district social assistance office. I might even call our OHIP office to see if there is a way I could qualify under the provincial plan.

Thanks Norb for your advice

Sue

I saw my family Dr last Friday and he didn’t have time to fill the form but told me he would do it Monday which was yesterday. He wanted to make sure it was done properly. He said if he need something clarified he would call me but he didn’t. So I hope he didn’t forget to do it. He only works at that Clinic Mondays and Fridays.

He told me also that the lab work my Rheumatologist order came back and the one test was positive, It was the HLA-B27 gene marker. He did not know what it could mean as more test result is needed. I go for my Doppler Ultrasound next week in Ottawa. Right across the street is my Rheumatologist office. I may want to print out some questions for the Rheumatologist and let him know the medication doesn’t seem to be working that much. I have been on it for 1 month. I will give the secretary the paper so she can let him have it so he will be prepared for my visit with him on June 26. Maybe I will be lucky and he will ask to see me after my ultrasound or maybe later that day before I come home to Cornwall. You never know.

Sue

Hi Aimee yes I am anxious wondering what he wrote down on the form. He has a secretary but no nurse. I will call on Friday as he works Fridays at that Clinic and ask the secretary to ask him if he filled it out or maybe he can call me.

I also can’t wait for next week I go for my Doppler ultrasound of my veins. I was under the impression that it takes a month to get the results back. That is what my Rheumatologist secretary told me. But today I talked to a co-worker who was on sick leave and just got back. She had an ultrasound last week at the same place I am going and it only took a week to get the results back.

Sue

Hi Norb For the ultrasound they are not aloud to say anything until the DR sees the results. I guess the way the DRs make there money.
Also I think because I have swelling in my hands due to tendinitis sometimes that may mean something else is going on. My Rheumatologist didn’t tell me why he tested for the HLA-B27 so I found out some stuff on the internet.

[B]Stuff I found[/B]
An HLA-B27 test may be ordered when a patient has acute or chronic pain and inflammation in his spine, neck, chest, eyes, and/or joints, and the doctor suspects an autoimmune disorder that is associated with the presence of HLA-B27.

Spondyloarthropathies are a group of arthritic diseases that share several common features. They commonly cause inflammation of the spine; however other joints may be affected. The tendon and ligament tissue near the spine or joint is also involved. A high percentage of people with these diseases share a similar gene called HLA B27. Finally, many patients also have inflamed areas in the eye, bowel, genital tract or skin.

At this time, identifying the presence of HLA-B27 does not predict the likelihood of developing an autoimmune disease.

Sue