A Post from The UK Forums

    • Anonymous
      May 24, 2006 at 6:07 pm

      This was posted at the U.K. forums by Fiona. I would like to post it here and get some thoughts.

      Her post is about going into a hyperbaric oxygen chamber and wondering if it might help GBS/CIDP people.

      Bobby Tessler gave the web site for the article


      I read it and something caught my eye and I would like to address it. In part of the article it says,

      “It can increase tissue oxygen levels that produce several important long term benefits including enhanced growth of new blood vessels [B]and increased ability of white blood cells to destroy bacteria and remove toxins”[/B]

      The “white blood cells” are what started GBS/CIDP off in the first place.They start doing their job and then forget to stop and continue to your nerves where they start eating away your myelin and for alot of others they went on to the axons.

      Is this a chance you want to take with your immune system, going on overload again?

      Please think about it carefully if you are considering it.

      Opinions please.

    • Anonymous
      May 24, 2006 at 6:16 pm

      hi brandy,

      i seem to recall this being discussed quite a while ago. first of all it is v $$$. 2ndly i think the conclusion was, like many hopeful cures, this is not one of them. take care. be well.

      gene gbs 8-99
      in numbers there is strength

    • Anonymous
      May 24, 2006 at 6:26 pm

      I know it’s not a cure , I was just wondering how people who read the article
      feel about it. It is not something that I would recommend to anyone.

      Fiona posted that on May 16th of this year, so it’s not an old post.

      I saw that people might think it was a cure all and I seriously hope they don’t take it as some kind of cure or treatment.

    • Anonymous
      May 27, 2006 at 9:55 pm

      Hi Donna,
      I agree with you wholeheartedly, anything that increases the ability of white blood cells(leukocytes) to attack does not sound like as Martha would say ” a good thing”….:) Those of us with autoimmune diseases already have an immune system that is ramped up on overdrive all the time, perpetually zooming around looking for the “bad guys” and in turn as in the case of GBS/CIDP taking out the “good guys” (myelin and axons) along with the bad.

      best wishes to you,

    • Anonymous
      July 28, 2006 at 10:57 pm

      I’d do some strong research before trying a new treatment, searching the NIH and medical journals (peer reviewed articles) for clues as to whether or not autoimmune diseases are helped by this treatment. Also, I would seek out the opinions of strong medical people, neurologists who can weigh the pros and cons of the matter. There is a lot of information out there, but the scientific, peer reviewed studies are the best sources I rely upon, along with qualified medical specialists who are familiar with the unique particulars of my medical condition. There are lots of variances among patients with GBs/CIDP.;)