17 years old with GBS

    • Anonymous
      February 7, 2010 at 12:00 pm

      I was diagnosed for the first time with GBS in 2002 as an 8 years. I was paralyzed from the chin down and was on a respirator, while I was living in Tokyo Japan. After many years of physical therapy I was almost fully recovered. I am a varsity swimmer and lacrosse player. Then on Jan 2nd I relapsed for the first time in eight years. I was back in the hospital on IVIG. It was not as severe was the first time, but it’s like fighting an uphill battle. My teachers at school don’t understand and neither to my peers. It’s a frustrating situation after working hard for eight years. I can’t go out for lacrosse and I am constantly tired. It would be great to have some motivation from kids in my situation! Now my doctors of Yale are wondering if I have CDIP.


    • Anonymous
      February 7, 2010 at 2:24 pm

      I’m not a kid but want to welcome you to the GBS/CIDP forums.
      Google “But You Don’t Look Sick” The Spoon Therory.
      If you can print it and let those that don’t understand read it, it may help them to understand why you are tired all the time.
      Try to get a lot of rest.
      Good luck to you.