You too!

July 21, 2010 at 1:30 pm

We are new to this foundation. What a great find! Why doesn’t the medical community at least refer patients to it if they don’t want to answer any of our questions? My wife is 15 years post GBS. Now having increasing pain, fatigue, decreasing strength, and endurance. Neuologist said it is not related to GBS. Apparently there is a trend here. Most of the studies we have read deal with relatively new GBS patients, perhaps 5 years out, but very little is said about the long term. Does anyone know about any longitudinal studies? Is anyone interested?