Year of diagnosis…

March 28, 2009 at 3:51 pm

Hi Stacey,
I think the year was 2000, when my primary care physician noticed I had Horner’s Syndrome, (which is an eye problem), which I probably had since 1999 since prior to that it was not noticed by doctors nor in photos. That is what started the long road to where I am today. He had sent me to a neuro. for investigation as to why I had the Horner’s. Then other symptoms would start to show up. And after many tests, and two years of what I did NOT have, (as the neuro. would cross things off the list, of which at first they thought I had MS), we got to the dx of CIDP with Lewis-Sumner variant, though later just full CIDP since it later affected both sides.