November 30, 2008 at 5:50 pm

Hi Stacey,
I think almost all of us has to yell at you and say “YOU’RE DOING TOO MUCH, GET SOME REST”. Try taking a few days off and do some R&R and see how you feel. If those things go away, BINGO!!!

I’ve never had a burning sensation, but I can get what I call “normal numb (falling asleep with my arm tucked under me) over syndrome numb” and I have to wait for it to return to just “syndrome numb”.


January 19, 2008 at 11:21 pm

Hello again Willie,
This site might help you learn how to be your own advocate, it’s worth a try [url]www.VoiceForTheUninsured.org[/url] If you look real hard at the small tabs on the top right of this site, they have a doctor finder. Perhaps one of the doctors who joined, will work with you.


January 19, 2008 at 6:49 pm

Hello Willie,
There’s nothing wrong with wishful thinking and hoping you don’t have this syndrome, but you probably are aware now that “something” is wrong, so if you have seen a neurologist who’s familiar with CIDP, accept that right now.

Have you tried a web site called [url]www.needymeds.com[/url] If you qualify, they will help people with no insurance pay for meds.

Also, if you own a house, you can apply for a home equity loan to cover medical expenses.