worked for me

December 3, 2008 at 3:59 pm

I guess I’m one of the lucky ones. I had my first 5 day treatment in August, and after the second dose, could walk again, and got better after each day. But I didn’t rest, went back to work full time, and by Oct 3, was rushed to the ER for my second 5 day treatment, and the addition to 60 mg of Prednisone. Again, on the second day, I was up and walking. I did have another 5 day, since I started with some numbness in my hands, and feet, and now I am what I consider 95% back to normal. Except for the fatigue. I weaned myself down slowly to 40 mg of Prednisone, and plan on doing that every couple of weeks (by 5mg), until I reach 10mg, then consider the alternatives. As a precaution, I am scheduled for two 1 day treatments a month apart. And today I learned I have subcapsular cataracts from the Prednisone, hence my decision to get off it. I don’t take any pharmaceuticals of then that, but do lots of supplements and herbs, and anti-imflammatory foods. Just thought I’d give IVIG credit, but I HATE the pred!!!

PS. I will only take Gammaguard Liquid. Gammunex and Gammaguard S/D 5%, gave me acid problems, and burning stomach, and headache. I don’t have to premedicate with Gammaguard Liquid. And Benadryl is not good for people with cataracts, so I won’t be taking that.